Meet Bianca H.!

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This week we had the pleasure of talking with Bianca Hernandez! Bianca was diagnosed with Crohn's disease in 2015 and she almost immediately parlayed her diagnosis into advocacy for her community. She worked with her school system to get better access to the private bathroom at her school and rallied and inspired other students affected by IBD to advocate for this in their schools. She was selected to join the National Council of College Leaders program at the Crohn's & Colitis Foundation- USA which allowed her to lead in many other advocacy initiatives including step-therapy reform and Ally's law and to work on ensuring that educational materials developed were properly translated into Spanish. This program also introduced her to life-long friends and other inspiring young people in the IBD Community. We talked about her advocacy work and how her efforts to ask for what she needed lead her to becoming a fierce advocate for the whole IBD community. We discussed the perils of comparing your healthcare decisions and disease with other people's journeys and how to destigmatize medical decisions and to not compare yourself to others. We discussed how IBD impacts the Latinx community and ideas on how to raise awareness about IBD and colon cancer screening within these communities. Bianca was so much fun to talk to and is so inspiring. I know you'll find her passion as infectious as we did.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

• Information on the National Council on College Leaders- Crohn's & Colitis Foundation- USA
• Crohn's & Colitis Foundation- homepage in Spanish
• Ally's Law/ Restroom Access Law- Crohn's & Colitis Foundation- USA
• Information about Step Therapy- Crohn's & Colitis Foundation -USA

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Κεφάλαια

1. Meet Bianca H.! (00:00:00)

2. [Ad] Tune in to the Patient Advocacy Voices Podcast today (00:12:49)

3. (Cont.) Meet Bianca H.! (00:13:39)