Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...

Rare Voices reveals the wisest path to a fulfilled life for patients with rare and orphan disorders. Brought to you by the people at Optime Care, a pioneering specialty pharmacy. In each episode, we uncover insights from patient advocates, pharmaceutical innovators, leaders in insurance, physicians, and caregivers. Prepare to provoke your mind and fuel your drive to serve rare and orphan patient populations.

The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...

Are you facing trials? Are physical and mental challenges weighing you down on our journey? Through his experiences with the rare disease myasthenia gravis, host Stephen V. Smith shares encouragement and inspiration as he seeks to create a life of meaning and connection. "Live Life Rare" is the companion podcast to the newsletter of the same name, which can be found at liveliferare.com. Join in the conversation as Stephen helps us discover and pursue what a rare life means to each of us.

Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laug ...

Based on the iconic, Emmy-nominated series on A&E, this show explores some of the most difficult-to-solve murders, which stymied investigators and went cold, sometimes for decades. In fact, one-third of all murders in America remain open. But thanks to dogged investigators and breakthroughs in forensic technology, these cases become part of the rare 1% of cold cases that are ever solved. Cold Case Files is hosted by Paula Barros.

On this podcast, we interview voice and bodywork professionals to provide helpful information for overall health and optimal function of the voice. We interview SLPs, Otolaryngologists, Manual Therapists, Body Oriented Psychotherapists, Health Coaches, Fitness Instructors, Broadway Performers, Opera singers, Singer/Songwriters, Voice Teachers, Composers, Company Managers, Sports Broadcasters, and more. It is our mission to educate the professional voice user and provide knowledgable, creativ ...

A cabinet of auditory wonders for the 21st century. If you would like to donate to help keep this project going you can donate to my Patreon: https://www.patreon.com/RandomTape

In our series of podcasts, FIECON team members engage with patient advocates and thought leaders to explore the burden, unmet needs, patient journey, and potential future treatments for specific diseases, with the aim of gaining a deeper understanding of the patient's perspective, particularly for rare diseases. At FIECON, we are dedicated to ensuring that life-changing treatments reach the patients who truly need them, while also increasing awareness and amplifying the patient voice to make ...

Insurance is a maze. Don’t get lost. Mark Geoghegan asks directions from all the top people in the Global Insurance and Reinsurance Industry

This podcast is about the advancement of rare disease research told by health professionals, researchers, parents, and advocates. This podcast is for you to learn how newborn screening research saves the lives of babies every day through discoveries of new technologies and treatments. You will hear stories from experts who treat babies, the families who care for them, and the researchers who make it all happen.

A fan podcast celebrating all things Penelope, Colin, and Bridgerton complete with episode deep dives, book rereads, theories and speculation, and plenty of spiraling from a group of friends who anxiously awaited Season 3 and now are braced once more for the Wilderness Weeks.

Welcome to The Pharma Podcast - Insights from industry experts and business leaders about important and current topics in Canadian Pharma, Biotech and Medtech.

Welcome to the On The Horizon podcast. This podcast series starts by taking you through recordings from our live event, and then will move onto more conversations with more brilliant people, throughout the year. We felt that the talks that we used to host at The Good Life Experience (our festival of food, ideas, music & craft that we ran for 8 years) on Hawarden Estate were really special and unusual. In many ways it was the guests’ conversations before and after the talks that made them dif ...

The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sendi ...

A 40-part podcast featuring Alison Moyet in conversation with Steve Coats-Dennis, exploring the key moments of her 40-year career as a solo artist: the highs, the lows and everything in between. New episodes every Monday and Thursday. Pre-order Alison's new album Key: https://alisonmoyet.lnk.to/Key

Insights into Success has been created to give small business owners and entrepreneurs around the world, never before access to successful business people to hear about their "warts and all" journey to success. There is no "sugar coating", we want to hear the truth so our listeners can have realistic expectations and therefore be better prepared to succeed! We specifically want to know, just how close they came to failure and why they think they ultimately succeeded. What do they think our l ...

STANDOUT on LinkedIn: in:dispensable truths, tools, and tips is a podcast focused on bringing our LinkedIn expertise and experience to listeners. For over 10 years, we have enabled professionals in reaching their career and business goals on LinkedIn, helping them show up, grow their sales pipeline, and land a new career. Listen to develop and increase your Significance over Time with Authenticity, Networking, Dedication, Open-mindedness, Understanding, and Tenacity on LinkedIn, and unlock n ...

We explore the unique lives and work of our community's leaders, professionals, and inspirational members--conversations about the challenges, courage, and dedication that are pillars of this community. We share new perspectives, insights, and knowledge about the rare disease that impacts our daily lives and guides our individual journeys. The National MPS Society exists to cure, support and advocate for MPS and ML.

Podcast by Managed Care Cast

Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...

Autoimmune Community Voices podcast features conversations with the diverse autoimmune community. This is a podcast of the Autoimmune Community Institute - acicommunity.org

For the next generation of executives who are unapologetically chasing change. We venture beyond conventional corporate dialogue to explore the authentic stories and transformative leadership advice of high-level business executives and community Change Agents. This podcast is a space where listeners can get to know the real executives behind the titles and accolades. Hosted by Lisa Gardner, this show transcends typical business conversations, offering a rare glimpse into the personal journe ...

Join Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is t ...

This show is devoted to jewelry store owners, the jewelry trade, and those who want to get a rare full access pass into the inner workings of the multi-billion dollar U.S. diamond, gemstone, fashion jewelry and watch industry. To learn more contact Rod@FourGrainer.com.

This free podcast is a long form conversation hosted by traveler, writer and curiosity seeker Rich Bryant with friends and guests that include artists, designers, authors and whoever steps up to the mic.

What does it mean to be a spiritual leader at this critical and chaotic moment in human history? Rabbi Charlie Buckholtz conducts intimate long-form interviews with other rabbis and culture-carriers, change-agents and court-jesters. On topics ranging from spiritual resistance to disorganized religion to Israel/Palestine to creativity to the possibility of individual and collective change, their lively journeys and conversations offer insight, humor, rare perspective and at times rank absurdi ...

Everyday of the week listen to the great shows from Old Time Radio. Those great shows that made of laugh or gave us exciting journeys into the Dramatic, Suspense, Action, Westerns, SciFi,and Adventure.

The best coaches and athletes in the world share stories and lessons on life, leadership and career success...and failure. The show is tailored for business men/women, entrepreneurs, leaders, coaches and athletes looking for the information and inspiration they need to take themselves, their careers and/or their teams to the next level. Show host, Coach Bruce Babashan (a.k.a. Your Corner Man), is a world renowned professional boxing trainer and former senior corporate executive. Coach Bruce ...