Τα καλύτερα Spondylitis podcast (2024)

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126 Days Flare-Free: My Longest EVER Without Ankylosing Spondylitis Pain (And How I Did It) 24:47

18d ago24:47

24:47

It's been 126 days since my last ankylosing spondylitis (AS) flare! That's the longest I have EVER gone as an adult without any debilitating sacroiliac joint pain whatsoever (that includes other AS related rib, joint pain or skin issues). In this episode, I look at how I got to this milestone: ✔️ The nitty-gritty of my AS flares ✔️ My 3-year, 7-mon…

1
Part 2 - Transitioning to Adult Rheumatology Care: For Young Adults with Spondyloarthritis 33:08

3d ago33:08

33:08

In Part 2 of this 2-part episode, Drs. Sadun and Cintron continue their discussion about how young people can successfully transition to adult rheumatology care, including how family can assist with this transition.

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Supporting Black Women with Psoriatic Arthritis: Ayesha’s Story 51:49

3d ago51:49

51:49

Cheryl and Ayesha also delve into the devastating impact fatigue can have on their lives and share tips for managing and preventing fatigue. Above all, they urge listeners to validate their own feelings and aim for full acceptance, with the hope that brighter days are ahead. Episode at a glance: Ayesha's Diagnosis Journey: Ayesha opens up about her…

1
Part 1 - Transitioning to Adult Rheumatology Care: For Young Adults with Spondyloarthritis 38:06

10d ago38:06

38:06

In Part 1 of this 2-part episode, Drs. Sadun and Cintron discuss the differences between pediatric and adult rheumatology care to help young adults transition successfully to adult rheumatology care.

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What’s it Like to Run Your Own Business with Rheumatoid Arthritis? Sarah’s Story 1:04:26

12d ago1:04:26

1:04:26

Cheryl and Sarah also discuss practical strategies for managing RA symptoms while maintaining productivity, from pacing your workday to leaning on support systems. They also explore how to prioritize self-care and flexibility, so you can successfully lead a business without compromising your health. This episode offers valuable insights for anyone …

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What does Remission Mean to Patients? With Eileen Davidson 40:56

16d ago40:56

40:56

After defining what remission is, Cheryl and Eileen take a deep dive into the importance of finding the right medical treatments and aiming for remission.They also dive into how small lifestyle changes, like setting boundaries and pacing yourself, can help you feel a sense of control over your symptoms. If you're feeling overwhelmed by your diagnos…

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Grounding Your Health: The Benefits of Earthing 1:00:02

17d ago1:00:02

1:00:02

Dr. Gaetan Chevalier, PhD, Director of the Earthing Institute, introduces listeners to earthing, also known as grounding, and how this technique has benefits for health and well-being.

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Traveling the World with RA and AS: James Hollens’ Story 58:12

23d ago58:12

58:12

Cheryl and James also touch on the emotional ups and downs of living with RA, and share practical tips for managing symptoms and staying active. Ultimately, they emphasize the importance of community and connection in navigating life with RA. Episode at a glance: James’ diagnosis story: James shares his journey to his rheumatoid arthritis and ankyl…

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The Role of Occupational Therapy to Maximize Functionality with SpA and Improve Quality of Life 41:58

24d ago41:58

41:58

Jeanne Drennan, OT/L, CNMT, an occupational therapist living with spondylitis, discusses how occupational therapy can help improve outcomes and quality of life for people living with spondyloarthritis.

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What's so Funny about Rheumatoid Arthritis? Insights from Comedian Jessica Michelle 1:22:25

1M ago1:22:25

1:22:25

Episode at a glance: Jessica’s Rheumatoid Arthritis Story: How Jessica got diagnosed and what her treatment journey has been like Exploring different treatment options: Jessica shares the ups and downs of trying different diets and lifestyle methods to manage RA, along with medications Humor as a Coping Mechanism: Jessica shares how she started imp…

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Part 2 of Medicare and Medi-Cal: What You Need to Know 49:19

1M ago49:19

49:19

In Part 2 of this episode, Stephanie Fajuri, Program Director for the Center for Health Care Rights, discusses Medicare, supplemental insurance, and Medi-Cal benefits.

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What’s it like to be a Doctor with RA and Vasculitis? 1:08:42

1M ago1:08:42

1:08:42

Elena also shares her favorite resources for living well with arthritis, including supportive footwear brands, arthritis gadgets, and inspirational books. Shes hares practical tips like finding the right shoes to support your joints, using dictation tools to reduce hand strain, and the importance of accepting that some pain may persist while still …

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Part 1 of Medicare and Medi-Cal: What You Need to Know 28:45

1M ago28:45

28:45

In Part 1 of this episode, Stepanie Fajuri, Program Director for the Center for Health Care Rights, explains Medicare and Medi-Cal benefits.

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The Power of Strength Training for Rheumatoid Arthritis, with Kinesiologist Dr. Jasmin Ma 51:19

1M ago51:19

51:19

Dr. Ma advises people with rheumatoid arthritis to start small, listen to their body, and use her "START" guide to gradually build an active routine that feels right for you. She also explains how the START guide is a useful tool for clinicians like physiotherapists and occupational therapists to support patients in developing sustainable strength …

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Optimizing Mobility and Functionality: Physical Therapy Strategies for Spondyloarthritis 33:31

2M ago33:31

33:31

Physical therapist Nicole Mozafari, PT, DPT, OCS, CMT, discusses how physical therapy can improve mobility and function.

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Research, Resilience, and JIA: Dr. Kaleb’s Journey 59:40

2M ago59:40

59:40

Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools. He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb’s personal insights into balan…

1
Overcoming Obstacles: American Ninja Warrior Lisa Hair’s Journey with Ankylosing Spondylitis 45:58

2M ago45:58

45:58

Lisa Hair, a physician assistant, and American Ninja Warrior competitor discusses her journey with spondylitis and how she has overcome the challenges.

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“Healing is a Messy Process:” Sonia’s RA and Graves’ Disease Journey 1:23:33

2M ago1:23:33

1:23:33

Sonia talks about how daily gratitude, yoga, medications, and the support of groups like Rheum to THRIVE have helped her pursue joy amidst the challenges of rheumatoid arthritis (RA), Graves’ disease and other chronic conditions. Sonia shares how the Rheum to THRIVE support group provided her with the courage to be vulnerable and set boundaries. Ch…

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Episode 24: Living Well with Ankylosing Spondylitis: Coach Jocelyn's Story 44:15

2M ago44:15

44:15

What does it take to transform from a non-athletic kid into a dedicated Muay Thai coach? According to Jocelyn Bolduc, it involves a lot of perseverance, passion, and an unexpected turn of events. This episode features Jocelyn's extraordinary journey from being inspired by action movies to stepping into the ring, experiencing both thrilling victorie…

1
The Negative Impacts of Alcohol on the Gut-Brain-Immune Systems 46:01

2M ago46:01

46:01

Dr. Melissa Mondala discusses the impact alcohol consumption can have on your body and mind.

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What’s it Like to Truly Partner with Your Doctor? The Power of Shared Decision Making, with Dr Liana Fraenkel 51:03

2M ago51:03

51:03

In this episode, Cheryl Crow and Dr. Liana Fraenkel dive into the crucial concept of "Shared Decision Making" (SDM) in rheumatoid arthritis care. SDM is a collaborative approach where patients and doctors work together to develop a treatment plan. It empowers patients to express their preferences and values, while doctors listen actively and consid…

1
Teeing Up for Spondylitis: Curt and Grant Rocca’s Journey to Raise Awareness 52:01

2M ago52:01

52:01

Curt and Grant Rocca, father and son, discuss their journey to Grant’s diagnosis and their mission to raise awareness about spondylitis through their annual charity golf tournament.

1
“It’s Like Managing a Circus”: How Maggie Thrives with Multiple Chronic Illnesses 1:30:25

3M ago1:30:25

1:30:25

In this episode, Maggie shares valuable insights from life with axial spondyloarthritis, sjogren’s, osteoarthritis, hypermobility, migraine, and POTS. She also shares her treatment journey which she divides into a “discovery phase, treatment phase, and tinkering phase.” Maggie and Cheryl discuss practical advice for managing multiple chronic illnes…

1
Daily Routines and Rituals for Mental Endurance in Managing Spondyloarthritis 1:00:08

3M ago1:00:08

1:00:08

Michael Leach, author, motivational speaker, and coach, discusses his personal experience with AS and how daily routines can improve mental health.

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Episode 23: A Fighter's Life, from Amateur Hopeful to Professional Legend: Souris Manfredi 58:10

3M ago58:10

58:10

What if you had to start over in a foreign country with a dream to be one of the best in a highly competitive sport? Join us as we sit down with Souris Manfredi, an incredible professional fighter from France, who shares her extraordinary journey from discovering MMA in Romania to making a name for herself internationally. Souris opens up about fac…

1
It’s not Just Joint Pain and 8 things Everyone who Loves Someone with Arthritis Should Know (Re-Release) 41:39

3M ago41:39

41:39

Back in January 2021, I shared the eight most important things that loved ones should know, so they can best support people with autoimmune arthritis. This episode includes messages and insights from twenty-eight other patients! Today, I’m re-releasing this episode with some additional insights I’ve gained after leading patient support and self-man…

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What to Do If Your Treatment Is Denied: A Guide to Self-Advocacy 35:59

3M ago35:59

35:59

Victoria Killian, a member of SAA’s Advocacy Committee, discusses steps to take if your treatment is denied.

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Episode 22: Unveiling the Mind-Gut Connection: Integrating Naturopathic and Conventional Medicine for Holistic Wellness 1:19:40

3M ago1:19:40

1:19:40

Trigger warning: this episode includes mental health and self harm. Note: this episode was recorded in 2023 In this episode, we focus on the mind and gut connection with our guest Dr. Karim Alami, ND. Dr. Alami shares insights on the transformative power of naturopathic and conventional medicine in providing the best care possible. As we delve into…

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Navigating the Path to SSDI Benefits for Spondylitis Patients 42:17

3M ago42:17

42:17

TJ Geist, an SSDI benefits advocate, discusses the process to apply for Social Security Disability Insurance (SSDI) benefits.

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The 9 Strangest Things I Do to Manage My Autoimmune Disease (AS) 44:34

3M ago44:34

44:34

Welcome to another episode of Gut Heroes! In this episode, I dive into some of the strangest things I do to manage my autoimmune disease. I share my personal insights and experiences using some 'unconventional' approaches that have helped me manage ankylosing spondylitis (AS), but can also be helpful for anyone dealing with a chronic health conditi…

1
Pilates for Spondyloarthritis: Flexibility and Strengthening Through Movement 40:48

3M ago40:48

40:48

Shane Keith Rhoads, MS, CSCS,a professional trainer, discusses how pilates can improve flexibility and strength for people managing SpA.

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Elevating the Patient Voice in Rheumatology Research: Cheryl and Jen’s Stories 44:09

3M ago44:09

44:09

Cheryl and Jen share exciting trends in rheumatology research that will help improve quality of life and develop better targeted treatments for rheumatic disease. They also discuss the importance of involving patients at all levels of research, and shared simple ways that listeners can get involved. Additionally, Cheryl and Jen reflected on the imp…

1
Juvenile Spondyloarthritis: Research and Advocacy Efforts with Dr. Pam Weiss and Parent Advocate Emily Neu 35:50

4M ago35:50

35:50

Pediatric rheumatologist Pam Weiss, MD, and Parent Advocate Emily Neu discuss juvenile spondyloarthritis and its treatment, and the Back Off JSpA research study.

1
How to Travel With an Autoimmune Disease and a Challenging Diet 37:20

4M ago37:20

37:20

In this episode, I explore practical strategies for travelling with an autoimmune disease and specific dietary requirements. I share my own personal experiences from my recent trip to the Faroe Islands and offer some of the insights I've gained over the years managing my ankylosing spondylitis through diet and lifestyle changes. I discuss: ✔️ Prepa…

1
Episode 21 : Early Signs and Long-Term Impact: Understanding Concussions 56:00

4M ago56:00

56:00

Are you aware of the subtle signs of a concussion? Join me, P2, for an enlightening conversation with Dr. Isaiah Redfern as we debunk common misconceptions about concussions. Dr. Redfern will guide us through the brain's anatomy and physiology, highlighting how delicate structures like the brainstem are vulnerable to impacts. Understanding and addr…

1
Tackling Rheumatoid Arthritis with Obstinance and Humor: Stasha’s Story 1:01:04

4M ago1:01:04

1:01:04

In this episode, Stasha shares her diagnosis journey for rheumatoid arthritis and reflects on what it was like being a parent to small children while learning how to adapt to rheumatoid arthritis. Stasha also shares how her quest to merge science-based and natural methods led her to starting a blog. Cheryl and Stasha reflect on the role “obstinance…

1
Fixing the Now: Powerful, Practical Ways to Reduce Pain and Stress ‘In the Moment’ 36:17

4M ago36:17

36:17

In this episode, I explore powerful, practical ways to reduce pain and stress 'in the moment'. I share personal strategies I've developed over the years to help shift into a better, less painful, less stressful state, including: ✔️ Using the 'third person' perspective to reframe stressful thoughts ✔️ Tackling challenging tasks immediately to avoid …

1
Navigating the Health Care System, Access to Treatment and Insurance Companies: The Patient’s Role 51:51

4M ago51:51

51:51

Robin Dore, MD, rheumatologist and member of SAA’s Advocacy Committee, discusses how patients can advocate for themselves while working with their physicians and health insurance to get needed healthcare.

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“Joined at the Joints:” How Marissa Became a YA Romance Writer with RA 55:10

4M ago55:10

55:10

Have you ever read a love story that features someone with chronic illness? In this episode, author Marissa Eller shares how living with RA led her to write her debut young adult (YA) romantic comedy book "Joined at the Joints." She and Cheryl discuss the importance of authentic representation in books and media, particularly for those with invisib…

1
6 Ways AS Is Affecting Your Nails. 7:39

4M ago7:39

7:39

In this episode I discuss an article from myspondylitisteam.com that discusses how your nails can be affected by AS. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article . Here are the links to the YouTube channels for: Yoga for AS Alex Levine, Fitness Alex's Full Wor…

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Ayurvedic Concepts of Food and Nutrition 45:52

4M ago45:52

45:52

Loribeth Cohen, PT, CAP, IMT-C, NET Practitioner, provides an overview of the Ayurvedic guidelines for nutrition and food.

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Where have I been? 9:50

4M ago9:50

9:50

In this episode, I just give a short talk about where I have been and the journey I hope some of you will do with me.Από τον Jayson Sacco

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How Rumination and Catastrophising Can Worsen Chronic Pain 28:01

5M ago28:01

28:01

Welcome to another episode of Gut Heroes! In this episode, I look at the fascinating relationship between rumination, catastrophising, and chronic pain. I explore the latest research and share personal insights on how our mental states and relationships could affect our pain management journey, including: ✔️ The role of stress in chronic pain (and …

1
Podiatric Care: Enhancing Foot Health for Spondyloarthritis Patients 41:13

5M ago41:13

41:13

Dr. Lindsey Cherry, Specialist Podiatrist in Rheumatology, discusses how spondyloarthritis can impact your feet and how a podiatrist can help.

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“Bald Girl Big World:” Colleen’s Alopecia Story 1:25:35

5M ago1:25:35

1:25:35

What’s it like to suddenly go bald at age 22? In this episode, Cheryl interviews Colleen Kydd, who speaks candidly about living with autoimmune alopecia. She shares how she went from covering her baldness with wigs to confidently, unapologetically embracing her identity as a “bald girl in a big world!” Colleen shares how she managed her alopecia in…

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World Health Organisation Releases Scathing Report On The Impact Of Ultra Processed Foods 16:51

5M ago16:51

16:51

Welcome to another episode of Gut Heroes! In this episode, I dive into a groundbreaking new report released by the World Health Organisation. It sheds light on the staggering influence of four major industries - tobacco, ultra-processed foods, fossil fuels, and alcohol. The report reveals the shocking tactics employed by powerful corporations to ma…

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Your Stories: A Conversation with Dancer Alicia Graf Mack 42:10

5M ago42:10

42:10

Alicia Graf Mack, Dean and Director of Juilliard Dance, discusses her journey with spondyloarthritis and her career as a professional dancer.

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Recipe: Tommy's Turbocharged Electrolytes 11:42

5M ago11:42

11:42

Welcome to another episode of Gut Heroes! This is a bonus episode, where I'm going to share one of my homemade recipes with you (MUCH cheaper then buying expensive sachets). This one is for electrolytes and I call it... wait for it... Tommy's Turbocharged Electrolytes. In this episode I look at: ✔️ All the ingredients you'll need ✔️ Why I created t…

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Gut Digest: Intermittent Fasting Success, The Western Diet Chronic Disease Connection and 'Smart' Antibiotics 17:21

5M ago17:21

17:21

Welcome to another episode of Gut Heroes! This is a Gut Digest episode, where I dive into some of the most fascinating stories and news in the gut health right now. Today, I look at: ✔️ New Study: Intermittent Fasting Success ✔️ New Study: The Western Diet and Chronic Disease Connection ✔️ An Exciting Development With 'Smart Antibiotics' To access …