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You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.
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Car reviews, news, and rants from an automotive fanatic!
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In this award winning podcast rugby league legend Rob Burrow has Motor Neurone Disease (MND), he asks seven questions to guests using his eye-gaze machine. Inspired by the number seven, which Burrow wore on his back when playing, episodes explore how sporting greats deal with adversity and how to celebrate the good at every opportunity. Burrow, who was 41, had lived with motor neurone disease (MND) since being diagnosed in late 2019. He died in June 2024. Producer: Tracy Gee. Digital Produce ...
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MND GAMES is a weekly podcast into the world of the MNDSET Fantasy Football League. Support this podcast: https://podcasters.spotify.com/pod/show/mndgames/support
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Musings, wonderings, and expressions from one Dr. Emil Ahangarzadeh. Includes a heavy dose of discussion regarding ALS (aka MND, Lou Gehrig's Disease) and updates on how Olga Ahangarzadeh (his wife who has been stricken with the disease) is handling its progression. We are raising funds for renovations to accommodate a wheelchair accessible living space and for participation in clinical trials abroad. If you can, please donate at bit.ly/saveolga . View the vlog at bit.ly/dottore_chronicles
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CReATe Connect podcasts are short recorded interviews on topics we hope will be of interest to patients with ALS and other motor neuron diseases.
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Trail running talk and banter, delving deep to gain insight and inspiration from interesting runners in New Zealand, Australia and the world. Learn more: dirtchurchradio.com
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Peter Scott-Morgan intends to defy his fatal diagnosis and live on as a cyborg. Peter is extraordinary. A robotics scientist, an acclaimed business process expert and an accomplished author. Peter and his partner, Francis, were also the first same-sex couple to be legally married in the UK. In 2017, Peter discovered he had a Motor Neurone Disease (MND). From the very start, he saw this terminal diagnosis as an opportunity to put his fascination with robotics and science fiction into practice ...
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ITV Pridecast is the podcast about all things LGBTQ+ brought to you by ITV. Join Liam McConkey where he speaks to people from across the community and finds out where they are on their journey. As well as that, listen for all the latest LGBTQ+ news, events, and the things that matter to you.
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‘Life & Loss’ is a new 21-part podcast series from Forest Holme Hospice Charity offering support and guidance for individuals facing a life-limiting illness or navigating grief. Episodes will be released every week and the series brings together individuals of different ages and backgrounds with unique first-hand experiences, alongside healthcare professionals, to share their stories, knowledge, information, and strategies for coping with the many challenges associated with life-limiting ill ...
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Conversations started by The Whitworth Group
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A new podcast hosted by Jill Douglas with former Scotland international and British & Irish Lion Doddie Weir bringing the sporting and medical worlds together. Supported by Aberdeen Standard Investments.
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Bringing you the latest news about rugby refereeing - appointments, law news, rugby news - as well as a closer look at all the aspects of being a rugby referee or match official
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Welcome DCT Audio. The home of great podcasts. The skills I learnt as a police officer for over 25 years continue to serve me well to this day. Road policing, later CID and child protection, I interviewed some of the most vulnerable and traumatised human beings. I now bring that experience to conversations I have with people who have interesting and inspiring stories to tell. Music under license from Episound. DISCLAIMERS: Any disclosures made in these podcasts have been previously reported ...
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HEY YOU🤓! YEAH, YOU😵! C🤗ME LISTEN👂 AND ENJ🤭Y! GREAT INTERVIEWS, "FAN M🏈NDAY"," KEEPING IT R🤐AL TUESDAY", "WHAT'S G🤔ING ON WEDNESDAY", "M.Y.O.B( MIND YOUR OWN BUSINESS) THURSDAY", and "SMALL BUSINESS OWNER FRIDAY" "W😇RDS OF W😇SDOM" BY: PASTOR CARO ON SUNDAY ❗BOUNS❗GREAT ARTISTS WITH H🌋T TR🚨CKS 🇺🇲 LET'S G📸 Support this podcast: https://podcasters.spotify.com/pod/show/the-mh6ll-entertainment/support
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Welcome to 'Gospel Impacts' a lighthearted and captivating chat show where we embark on an exhilarating journey to explore the profound effect and impact the Gospel has had on people's lives. Get ready to be enthralled by an array of fascinating stories shared by captivating individuals from across the globe. In this uplifting podcast, we invite remarkable guests to join us for delightful and insightful conversations. These extraordinary individuals, hailing from diverse backgrounds and cult ...
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Annabella talks about her own personal experience of caring for her husband Danny, who is living with Motor Neurone Disease (MND) and the challenges and experiences involved in supporting a loved one through this cruel and relentless disease. She discusses the impact of his diagnosis and the subsequent effect it has had on their daily lives, as wel…
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Julie Labra is a Project Manager with MNDA. Julie has worked with people with MND for the past 19 years. Julie was the project manager on the new Lived Experience Network (LEN) which brings together people with Lived Experience and people who wish to research different aspect of MND. Working on projects with people who have Lived Experience is teac…
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Fire Fighters Everywhere! Part 2 of the Firies Climb for MND/ Helen Waterworth and Chris Newsome from His & Hers Endurance KITZ
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1:34:11
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Kia Ora e te whānau! If, as we posited last week, the collective noun for a group of Fire Fighters is a Calendar then in this episode we’ve got most of the months ticked off!!! First off, we’ve got all the action from day 2 of the Firies Climb for MND. Then in the second part of our show Matt had the pleasure of sitting down at home with Helen Wate…
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A story of enduring love despite the cruelness of MND (with Coronation Street’s Paul and Billy)
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For anyone who’s been watching Coronation Street of late, it would be hard not to be moved by the motor neurone disease storyline which has affected the lives of Paul Foreman and Billy Mahew. Seeing Paul suffer with the illness that has made his body and speech gradually deteriorate, has brought home the harsh reality of those with MND. The climax …
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Stuart talks with Rob and Lindsey about life with singer and Radio One presenter Mollie King. The trio talk about Stuart’s plans for the future now he’s retired from playing cricket and how he once ignored Elton John’s phone calls. This episode was recorded in 2024 before Rob passed away on 2 June, four and a half years after being diagnosed with M…
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Ricky talks with Rob and Lindsey about his battle with depression and how he’s overcome adversity to find happiness in his life. The Boxing legend chats about his love life with Coronation Street actor Claire Sweeney, and shares his passion for Man City. This episode was recorded in 2024 before Rob passed away on 2 June, four and a half years after…
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Football stars Stephen and Steph Darby (née Houghton) join Rob and Lindsey to talk about what life is like living with MND. The couples talk about how female sport is depicted and what their hopes and dreams are for their families in the future. This episode was recorded in 2024 before Rob passed away on 2 June, four and a half years after being di…
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Kevin talks to Rob about their sporting careers at Leeds Rhinos, the laugh out loud moments which they cherish. The friends share what their super-hero nicknames are for each other and how they’ve both dealt with Rob’s diagnosis. This episode was recorded in 2024 before Rob passed away on 2 June, four and a half years after being diagnosed with Mot…
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Daniel Jones: Reflections On The Journey of a Professional Athlete
1:12:19
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Kia Ora e te whānau! Simply put, Daniel Jones is heaps good at running, so good that at the start of the year he transitioned from being an elite runner supported by a brand to being a professional athlete on an international team. Matt spoke to Dan from his home in Lower Hutt, off the back of his first USA and European season as part of the Adidas…
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice Charity in Poole, Dorset. In this episode, Danny Fudge-Harman discusses living with Motor Neurone Disease (MND) and the immense physical and mental challenges he has faced since his diagnosis 10 years ago. He reflects on life before and after his diagn…
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Kia ora e te whānau! Where were you when you first heard about the big orange S? On this episode of the DCR AidStation podcast, Eugene and Matt dive deep into the good, the bad, and the (very) ugly that is Strava. Our heroes discuss what they love and love less about the social fitness platform and the positive and less positive impacts it has had …
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Rob passed away on 2 June 2024. In the months before his death, Rob recorded this bonus episode. Hear Rob answer questions from all of his celebrity guests in series one. This episode, and series two of the podcast, has been produced with the blessing of the Burrow family.Από τον BBC Local Radio
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice Charity in Poole, Dorset. In this episode, Lorien, a mindfulness coach and wellbeing expert, highlights how mindfulness can be used as a tool for grieving. He explains the term ‘mindfulness’ and discusses how specific mindfulness techniques or exercise…
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Let's Talk MND - Firies Climb for MND, Matt Pridham, Prof. Dominic Rowe, Jane Simpson, Gavin Clifton
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I was delighted to be included in the Firies for MND climb in the blue mountains and invited to be on the Dirt Church Radio podcast with Matt Pridham, Prof Dom Rowe and Gavin Clifton. Dirt Church radio have kindly allowed me to share their podcast with you all. Prof. Dominic Rowe shares very interesting information about the possible link between t…
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Caffeine is a chemical most of us ingest every day. In addition to its stimulant properties, there are some theoretical ways it could help slow ALS progression. Here we discuss the contradictory pre-clinical models and the lack of a convincing relationship between caffeine intake and ALS progression in natural history studies.…
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AidStation Podcast 017 – The Firies Furber Stairs Climb For MND Live show
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Kia ora e te whānau! We are not going to lie to you, this is a heavy episode, however it is absolutely one that you need to hear. Matt and Ali Pottinger ventured to Scenic World in Katoomba to facilitate this discussion for the Firies Furber Stairs Climb. We spoke to the original Firies Climb Organiser, Matt Pridham, about his personal experience w…
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Martin Edwards, Chief Executive for Julia’s House, the Dorset and Wiltshire Children’s hospices, shares his insights on bereavement, remembrance and finding a way forward when your child has died. He discusses the emotions parents and family members might experience in the early days of grief and how it evolves over time, while offering advice and …
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For anyone who is LGBTQ+, navigating your sexuality along with other aspects of your life can bring challenges. Mohsin Zaidi knows this more than many. Growing up in a strict conservative Muslim family, he had to balance the expectations of his faith and culture against his sexual orientation. On top of that, social class has been a characteristic …
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Eugene and Matt talk 100 miles. The where, what, and why.
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Kia Ora e te whānau! This week on the pod, Eugene and Matt settle in for a good old chat about Matt’s upcoming 100 mile event and Matt gets the opportunity to chat to one of his running idols (Eugene, and yes, we are leaving that in) about his process and engagement with the distance. Following on from last week’s AidStation when we spoke to coach …
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Kia ora e te whānau! The great questions of our age answered by two of the greatest minds (and Matt and Eugene)!! When it comes to training, how much is too much? Or too little? And do we go by time or distance? And how will we know?!?! The answer? It depends … sort of ... This is a great discussion with SQUADRUN coaches Kerry Suter and Ali Potting…
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Kathy, a counsellor at Forest Holme Hospice, discusses the personal journeys of those who are dying. She explains how different people cope and whether they find hope and joy on their journey, as well as offering insight into how people can feel about hearing commonly used phrases such as ‘being brave’ and ‘fighting cancer’. ....... About Forest Ho…
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Dr Rachel Yerbury (Phd) is a registered psychologist as well as a lecturer and researcher in the School of Psychology and Public Health, La Trobe University Australia. Her research area focusses on the connection between humans with Nature / animate worlds and how this impacts mutual well-being. In particular. Rachel is also an author, a mother and…
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Leo, a Social Worker based at Forest Holme Hospice, explores how children understand and cope with death. He shares advice about how to break the news of death to a child and the subsequent grief support and gives real life insights into how grief can impact a family, while also offering guidance on the resources and support available for children.…
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Lee Grabarek - From the Nutmeg State to Ōtautahi, a trail well travelled - Dirt Church Radio 289.
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Kia ora e te whanau! This week Matt has the distinct privilege of speaking to Lee Grabarek. Lee (they/them) is a non-binary person who has been ripping it up on the trails and roads of Aotearoa for the last ten years, after travelling from Connecticut, where they enjoyed a very outdoorsy existence. Matt spoke to Lee about their life growing up, the…
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Michael Benatar is a Professor of Neurology and Chief of the Neuromuscular Division and Executive Director of the ALS Center at the University of Miami. Here he discusses the recent publication “The Miami Framework for ALS and related neurodegenerative disorders: an integrated view of phenotype and biology”.…
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Kia ora e te whānau! This week we’re joined by DCR favourite guest Gareth Morris as he recounts to us how he knocked off a run he first dreamed of more than a decade ago when he read the DCR favourite book, Feet in the Clouds, by Richard Askwith. The famous Bob Graham Round, a fell running loop in the English Lake District, challenges runners to ta…
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Mary discusses her personal experiences of grief following the loss of her husband Eric and offers her insights and strategies for navigating loss and finding healing. She talks about her initial feelings of denial, anger and chaos in the immediate aftermath of Eric’s death and discusses strategies that helped her cope day-to-day as she explored ne…
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice Charity in Poole, Dorset. In this episode, Jennie shares her experience of grief and finding purpose again following the loss of her Dad in 2013 just two weeks after her wedding, where her Dad's presence was her greatest wish. She explains how through …
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Kathie Barker Many of us don’t know that once we’ve been diagnosed with a terminal illness we have access to our Superannuation. Kathie is the CEO of "Release My Super" and she tells us how you can access your Superannuation You also may be eligible to make a TPD super claim for compensation if you’ve suffered an injury or illness that permanently …
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Over the last few years we’ve all become more used to seeing trans issues dominate the headlines. The discussion has become part of our political discourse in which decision-makers are using it to create debate and sometimes even division. In such instances, trans people have been portrayed in a negative way, with the conversation around trans issu…
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David Hellard - Podcast Baddy, Caffeine Daddy, And an Advocate for a Life on Two Feet
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Kia ora e te whanau! David Hellard has had a long and varied history with running. From hashing with his army dad, to reclaiming fitness in his 20’s obstacle racing, adventure racing, a love of city exploration, running everywhere, ultras, to founding the long-running and wildly popular Bad Boy Running podcast. David has run many of the world’s gre…
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Tom was invited to write poems about the Maurice Dobson Museum and the man to whom it is dedicated too. Tom Juniper is a poet based in Sheffield. His work often focuses on the experience of being other, whether that’s talking about being autistic, being part of the queer community (He is a bi, non binary trans guy), or about the Other as in strange…
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice in Poole, Dorset. In this episode, Dr Amy, Lead Consultant at Forest Holme Hospice, explores the role of palliative care in enhancing the quality of life. She explains the meaning of ‘Palliative Care’ and what and holistic approach to care involves, as…
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Kia ora e te whānau! We’ve had the pleasure of some salubrious recording locales with Mr Andrew McDowall and this time is no different. Fresh off a DCMF he’s hit the Forestry Road Subaru Studios with Eugene and Matt for a full rundown of his Western States experience. We even got to stroke the buckle. *Spoiler Alert* That’s a pretty flash buckle, a…
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Our guest this week is Michael Thurn the CEO and Managing Director of PharmAust, a clinical-stage biotechnology company. He tells us about Monepantel which is a well-known veterinary drug. It has been shown to have an effect on the abnormal accumulation of protein in cells. This accumulation is associated with motor neurone disease. Monepantel work…
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice in Poole, Dorset. In this episode, Clive discusses his experience of love and loss of his wife Sandie as they faced the unexpected challenges of both ME and cancer after 30 years of marriage. He explains journey of initial triumphs and then downturns w…
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The 2024 WUU2K Special – Leaving it all out on the trail.
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In its nine-year history the WUU2K has kicked many a runner in the ass. This year it kicked Matt in the head. Antecedently to the unfolding malarky, Eugene and Matt caught up with NZ trail legend Jenny Hirst, WUU2K race director and founder Gareth Thomas, and long-time collaborator Brent Robinson. You’ll get all the action from the start line, and …
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Jason and Anthea Smith are MND Warriors. Jason was diagonsed in 2017 at the age of 39. Together they are battling this disease and raising awareness at the highest levels. They ROCK.Από τον Jane Simpson
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Have you got what it takes? Coach Kerry and Ali on what to think about when planning your next goal
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1:04:57
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Kia ora e te whānau! On this episode, Eugene and Matt are joined by the brains trust of SQUADRUN Ali Pottinger and Kerry Suter for a play-along-at-home adventure around the start of planning for a big adventure or event, in this case, Matt’s build up to the Tarawera Ultra Trail. As usual with these conversations, Kerry and Ali are wise beyond years…
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Welcome to the "Life and Loss" podcast, brought to you by Forest Holme Hospice in Poole, Dorset. In this episode, Liz, an End-of-Life Care Educator based at Forest Holme Hospice, discusses what should be included in an End-of-Life Care plan and why they are so important to patients, and their loved ones. She explains some common misconceptions abou…
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice in Poole, Dorset. In this episode, Natalie shares her journey of love, loss, and resilience following the tragic loss of her husband, Nick, to Head and Neck Cancer in 2021 at the young age of 43. In this deeply personal conversation, she opens up about…
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Exploring Faith and Culture : Insights from an Award-Winning Author and Filmmaker
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Welcome to the latest episode of Gospel Impacts. In this episode, we have a special guest, Glen Scrivener, an award-winning author and filmmaker renowned for his work at the intersection of faith and culture. Originally from Australia and educated at Oxford, Glen is now ordained in the Church of England. He has authored nine influential books, incl…
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice in Poole, Dorset. In this episode, Kathy, a counsellor at Forest Holme Hospice, discusses the emotional impact of receiving a terminal diagnosis, or palliative prognosis and shares some coping strategies. She explains the meaning of a ‘terminal diagnos…
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The episode of Let’s Talk MND is about the best practice of research collaboration between Dr Marnie Graco and people with MND which is crucial for advancing understanding and care. This approach not only improves the relevance of research programs but also fosters a sense of empowerment and involvement among those directly affected by MND. It's a …
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Bradley Houghton – Trail Running NZ and the 2024 WUU2K Preview
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Kia ora e te whānau! “At least I don’t have to listen to my own voice”. So goes the bio of Bradley Houghton, the maestro behind Trail Running NZ, the newsletter that has taken the scene by storm. Breaking his own rule, Bradley sits down with Eugene and Matt to discuss his own history with trail running, and the motivation to start Trail Running NZ.…
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Maxine Gee was diagnosed in August of 2023 with Bulbar Onset MND which means she is unable to talk. Maxine is living her life with MND to the MAX Here she and one of her tribe Snez tell us her storyΑπό τον Jane Simpson
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Kia ora e te whānau! Our mate Andrew McDowall is quite good at running. Eugene calls him (inexplicably) the fifth Beatle of DCR, which is absolutely true if not numerically suspect. Andrew has been trying to get into Western States for what has felt like 100 years, but is actually 9 years. Which can feel like 100 years, I’m sure. He only went and b…
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In the latest episode of the ITV Pridecast, Liam McConkey and Jack Marshall catch up with Patrick Walters, the executive producer behind the highly successful Netflix series Heartstopper. Walters, who has been a pivotal force at See-Saw Films which produces the series, has steered the show's first two seasons to critical acclaim. As anticipation bu…
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From Pioneer Navel Fighter pilot to Commercial Hero Captain
1:06:10
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In this episode, we delve into the incredible journey of Captain Tammie J. Shults, a pioneering pilot and a woman of deep faith. Captain Shults made headlines in 2018 when she safely landed Southwest Airlines Flight 1380 after a catastrophic engine failure. Her calm demeanor, exceptional skill, and unwavering trust in God saved countless lives and …
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Welcome to another episode of the "Life and Loss" podcast, brought to you by Forest Holme Hospice in Poole, Dorset. In this episode, Caroline talks about navigating grief within stoic families that uphold the "stiff upper lip" mentality, particularly focusing on the challenge of being unable to cry when someone dies. She discusses her personal grie…
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