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What Doesn’t Kill Me - Episode 2 Jen Blaustein on Crohn’s disease 4K
Manage episode 422412225 series 3578759
Το περιεχόμενο παρέχεται από το quinliskmeg. Όλο το περιεχόμενο podcast, συμπεριλαμβανομένων των επεισοδίων, των γραφικών και των περιγραφών podcast, μεταφορτώνεται και παρέχεται απευθείας από τον quinliskmeg ή τον συνεργάτη της πλατφόρμας podcast. Εάν πιστεύετε ότι κάποιος χρησιμοποιεί το έργο σας που προστατεύεται από πνευματικά δικαιώματα χωρίς την άδειά σας, μπορείτε να ακολουθήσετε τη διαδικασία που περιγράφεται εδώ https://el.player.fm/legal.
Jennifer shares her incredible journey with Crohn's disease and Rheumatoid Arthritis. She was diagnosed when she was 11 years old with debilitating Crohn's disease. At 19 she had very serious surgery which was life changing .
00:00 introduction
00:37 Jen's 6 Episode Insights
01:50 Who is Jennifer
01:45 What is Crohn's disease, her symptoms, surgeries and her most life changing surgery an ileostomy, her secondary autoimmune disease is Rheumatoid Arthritis, J Pouch surgery
06:27 The differences between Colitis and Crohn's disease
08:06 What exactly is an ileostomy and why they are not to be feared
08:38 How the ileostomy changed her life for the better
10:09 Diet and her Crohn's disease
13:14 How Jen's identity and her sense of self has changed since her diagnosis
16:35 The role shame plays in our lives as we navigate our illness
18:49 What should people that love and support us refrain from saying and what is ok to say
23:14 Chronic pain is a thief that takes so much away. What has she lost, what has she gained?
27:39 Medications like Gabapentin help her nerve pain yet there are many medicines she can't take for pain due the negative interactions with her Crohn's
30:02 The importance of a good mental health team and chronic pain
31:30 Medical Marijuana for pain control
32:18 The importance of humor in Jen's life
35:58 Jen offers advice for the newly diagnosed, self advocacy, finding the right doctor, taking a person with you to big appointments
37:48 Jen finishes the statement "What Doesn't Kill Me"
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