Amanda Semenoff's Story of Living With Crohn's Disease

The Spoonie Struggle

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3+ y ago 1:02:32

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Episode 26: Amanda Semenoff's Story of Living With Crohn's Disease

In this episode, Amanda Semenoff discusses her experience with Crohn’s disease. Misdiagnoses included psychiatric conditions, lupus, pregnancy, eating disorders, and stress. She found that once she had a formal diagnosis, doctors started to take her complaints more seriously and treatment was started more quickly. Her triggers include certain foods such as soy, heat,and stringy fibrous vegetables. She is diligent about calling ahead at restaurants to find out all the ingredients and to determine what she can safely eat. She has to be careful about which medications she takes, as some have long-term side effects. Treatments include prednisone, avoiding triggers, occasional fasting, rest, antibiotics, and psychotherapy. Challenges include doctors piecemealing treatment, keeping all the treatments straight, and preserving her energy. In relationships, make sure that the other person can cope with the symptoms of your condition and are willing to help emotionally support you. Amanda discusses tips and tricks to manage relationships and raising kids while living with chronic disease.

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Hosted by: Jessica Temple

Music by Antarcticbreeze Music

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