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Building Support for Vitiligo: Beautifully Unblemished Community
Manage episode 427249656 series 3474372
Το περιεχόμενο παρέχεται από το The Melanin Initiative. Όλο το περιεχόμενο podcast, συμπεριλαμβανομένων των επεισοδίων, των γραφικών και των περιγραφών podcast, μεταφορτώνεται και παρέχεται απευθείας από τον The Melanin Initiative ή τον συνεργάτη της πλατφόρμας podcast. Εάν πιστεύετε ότι κάποιος χρησιμοποιεί το έργο σας που προστατεύεται από πνευματικά δικαιώματα χωρίς την άδειά σας, μπορείτε να ακολουθήσετε τη διαδικασία που περιγράφεται εδώ https://el.player.fm/legal.
Welcome to the Melanin Initiative!
In this episode, we are joined by Tonja Johnson, the executive director of Beautifully Unblemished Support Group, Inc. Diagnosed with vitiligo in 2014, Tonja faced significant challenges finding information and support, leading her to establish the non-profit in 2017. Together, they discuss the critical support needed for children and teenagers with vitiligo, and the importance of events like photo shoots and camps sponsored by the Global Vitiligo Foundation.
Tonja shares insights into her organization's commitment to providing a safe space, mental health counseling, and educational resources for individuals with vitiligo and other skin disorders. The conversation also highlights the importance of raising awareness, seeking donations, and collaborating for speaking engagements to garner public and healthcare support. The episode delves into the growth of the organization and the dedication required to manage its operations, including international outreach.
Tonja also opens up about her personal life, sharing her passion for praise and worship, travel experiences, and skincare routines. Her story emphasizes the importance of embracing dreams, stepping out in faith, and believing in oneself. This episode serves as a testament to the impact one person can make and the significance of fostering community and resources for those affected by vitiligo and other skin disorders.
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Welcome to the Melanin Initiative. We are a health literacy podcast offering our nursing perspective. By watching on YouTube or listening on your favorite podcast app, we hope you feel empowered to ask questions, educated on how to manage your health, and confident to navigate the healthcare system. If you haven’t already, subscribe so you can be notified when we release a new episode. Thumbs up the video and leave a comment or two, it helps us help you. It also shows YouTube this content is valuable and helps to make sure YouTube shows our content to those who need to hear it.
Connect with Tonja Johnson:
-Facebook https://www.facebook.com/beautifullyunblemished
-Instagram https://www.instagram.com/beautifullyunblemished
-Twitter https://twitter.com/beautifullyunbl
Resources:
-Beautifully Unblemished https://www.beautifullyunblemished.org/
-Global Vitiligo Foundation https://globalvitiligofoundation.org/
-Skin Coalition https://skincoalition.org/
-Florida Academy of Dermatology https://www.faderm.org/
-American Academy of Dermatology https://www.aad.org/
Stay in touch!
-Email: tmi.melanin@gmail.com
-Listen to the podcast: https://www.buzzsprout.com/2186156
-Subscribe to our YouTube channel: The Melanin Initiative https://www.youtube.com/@themelanininitiative
-Follow us on Instagram: @tmi.melanin https://www.instagram.com/tmi.melanin/
-Follow us on TikTok: The Melanin Initiative https://www.tiktok.com/@themelanininitiat?_t=8dAhVy7KLgQ&_r=1
-Follow us on Facebook https://www.facebook.com/people/The-Melanin-Initiative/1000935485203
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