Ep. #16 How to Identify infantile spasms and take action. With President of Tuberous Sclerosis Alliance- Kari Rosbeck

Doctor Mommy Speaks Parenting

December 1- 7th is the infantile spasms awareness week. Every year a coalition of international organisations teams up to raise awareness about these spams. Like the American Academy of Pediatricians, tuberous sclerosis alliance, epilepsy foundation, child neurology foundation, etc. I am humbled to have partnered with them to help raise awareness about infantile spasms. They are one of the primary symptoms of a condition called tuberous sclerosis.

our guest is the President and CEO of tuberous sclerosis alliance, USA.- Kari Rosbeck

We have discussed:

1. Why one needs to know about infantile spasms?
   
2. What are Infantile Spasms? How common are they?
   
3. When should parents be on the lookout for it?
   
4. What to do during Covid era?
   
5. What is the Outlook for Children with Infantile Spasms?
   
6. A helpful mnemonic tool – an easily remembered acronym—STOP
   

You can connect with Kari or support the TSA below:

• Facebook: tsalliance
  
• YouTube: TuberousSclerosisAlliance
  
• Instagram: @tsalliance
  
• Twitter: @tsalliance
  
• Infantile Spasms Website: infantilespasms.org
  

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Happy Parenting.

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