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Parenting A Complex Child, Advocacy, Support Group, & Passion with Michelle Choairy S7 E42
Manage episode 448811731 series 3568783
Το περιεχόμενο παρέχεται από το Jennifer Campbell. Όλο το περιεχόμενο podcast, συμπεριλαμβανομένων των επεισοδίων, των γραφικών και των περιγραφών podcast, μεταφορτώνεται και παρέχεται απευθείας από τον Jennifer Campbell ή τον συνεργάτη της πλατφόρμας podcast. Εάν πιστεύετε ότι κάποιος χρησιμοποιεί το έργο σας που προστατεύεται από πνευματικά δικαιώματα χωρίς την άδειά σας, μπορείτε να ακολουθήσετε τη διαδικασία που περιγράφεται εδώ https://el.player.fm/legal.
first pregnancy at 38 no amniotic fluid at 29 weeks sent straight to hospital
3 weeks on bed rest and had a C section at 32 weeks. He was 3 lbs 1 oz and stayed in NICU for 4 weeks.
He fell behind in all milestones and didn't like to eat.
18 months I knew something was wrong and started looking for help. I found an OT that got me Regional Center help. This is our state's program.
at 3 he still wasn't saying any words. so I started searching for speech therapist that could help. We ended up in Connecticut.
forward to when he was 8 and we were able to get a genetic test and he was diagnosed with TBR1 a rare genetic disorder with 190 kids in the world with it. He is one in 190.
I am now helping moms with complex kids take the steps they need to get help for them with early intervention.
I am a mom of a complex kid. I have been my son’s best advocate and have learned through the years what it takes to get the best care for my child.
I am the Founder of Collective Wisdom for Complex Kids, a support group for mothers with children with disabilities.
I have a passion for helping families re-evaluate and prioritize their dynamics, along with guiding them from confusion to clarity while raising complex children.
FIND HER HERE:
https://www.facebook.com/wisdom4complexkids
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