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Episode 7: Trikafta
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Το περιεχόμενο παρέχεται από το What The CF! A Cystic Fibrosis Podcast. Όλο το περιεχόμενο podcast, συμπεριλαμβανομένων των επεισοδίων, των γραφικών και των περιγραφών podcast, μεταφορτώνεται και παρέχεται απευθείας από τον What The CF! A Cystic Fibrosis Podcast ή τον συνεργάτη της πλατφόρμας podcast. Εάν πιστεύετε ότι κάποιος χρησιμοποιεί το έργο σας που προστατεύεται από πνευματικά δικαιώματα χωρίς την άδειά σας, μπορείτε να ακολουθήσετε τη διαδικασία που περιγράφεται εδώ https://el.player.fm/legal.
Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you.If you're part of the CF community and not aware of Trikafta (or Kraftrio) then you've been living under a rock! This 'miracle' treatment isn't yet funded in New Zealand and we want that to change ASAP.
Edward Lee is a 39-year-old PWCF living in Wellington. He self funds Trikafta and is celebrating two years on this life-changing drug. I wanted to speak to Ed to find out more about his life with CF and his journey to getting Trikafta. Many of you will know him from various media interviews he's given and his involvement in campaigning to get Trikafta for Kiwis. Ed was very open, knowledgeable and positive about the future so I hope you enjoy getting to know him better in this podcast.
You can follow Ed on Instagram as @kiwi_cf_warrior
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