Τα καλύτερα Life As We Know podcast (2024)

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Transforming Adversity into Growth for Parents of Disabled Children 40:08

8M ago40:08

40:08

When you first discover you'll be parenting a child with disabilities, the road ahead can seem daunting and lonely. Kris Burbank and Linda Hoopes join me to shed light on this path, offering wisdom from their book "Embracing Another Normal." Together, we unpack the resilience necessary for such a journey, sharing personal stories and strategies tha…

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64. Visual Thinking in a "Talky Culture" with Temple Grandin 1:04:24

12M ago1:04:24

1:04:24

Ever wondered how one's mindset shapes their success? Join us as we explore this theme with the remarkable Dr. Temple Grandin, an autism advocate who turned her diagnosis into a testament of resilience. She shares her journey from a non-verbal childhood to becoming a professor at Colorado State University and a celebrated author. Listen in to this …

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63. Inclusive Journeys: How Accessible Go is Changing Travel 45:53

1y ago45:53

45:53

Navigating the world with a disability can often feel like an uphill battle, especially when it comes to travel. We've experienced it firsthand as we journey with our son Lliam. Our struggles sparked a conversation and led us on a journey to understand more about accessibility. We found ourselves crossing paths with the passionate advocates behind …

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62. Thoughtful Spaces And Joyful Places - Custom Joy 1:17:51

1y ago1:17:51

1:17:51

When we first spoke with Tiffany Dill several months ago it was about her Universal Design Consulting firm, Blue Day 2. As of July 1, 2023, she has combined her talents and passion for accessible design with Gretchen Kingma, who, like Tiffany, has experience as an Occupational Therapist. Gretchen is also a top producing realtor in the St. Louis are…

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61. Magic Mystery Tour 1:10:56

1+ y ago1:10:56

1:10:56

Moving out of a family home is one of life's "exciting, sad, happy, and scary" events. There are so many changes that come with having a place of your own. But...there is also growth and independence. There are new things to discover and experience - for parent care providers and for the young adult who is spreading their wings. Todays story is abo…

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60. With Liberty and Access For All: MDRC 35:08

1+ y ago35:08

35:08

We all have two basic needs as human beings. One is to be authentic, to live our lives in a manner that reflects our true selves. The other human need is to be accepted within a community. When these two need conflict, when the community to which we belong does not accept our authentic self, the most common reaction is to "mask" that part of our id…

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59. Sweet Dream are Made of These: The ZPod Story 49:20

1+ y ago49:20

49:20

Many people seem to have a "problematic" relationship with sleep. We take medications to keep us awake...and we take medications to make us sleep. But sleep...a GOOD night's sleep, is essential to our psychological and physical health. Autism is one of those disabilities that can manifest itself in a broad spectrum of sensory issues...and often the…

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58. They Listen, They Care 1:39:32

1+ y ago1:39:32

1:39:32

Individuals with intellectual and/or developmental disabilities (I/DD) and their families often find themselves dealing with complexity and even intentional obfuscation as they navigate the path of Medicaid eligibility and benefits That is why we find it exhilarating when along that path we find individuals with expertise and empathy. I have discov…

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57. Collaborating and Trust, some help with planning for the future 46:00

2y ago46:00

46:00

"The best laid plans of mice and men often go awry!" is an old and unfortunately true statement. And "best laid plans" often "go awry" for two reasons. 1) poor planning...or no planning, and 2) people don't work collaboratively to create solutions that work for all concerned. Both are a result of human error. And both are avoidable. But we all know…

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56. Barriers to the Ballot 1:44:55

2+ y ago1:44:55

1:44:55

Voting is a constitutional right for an overwhelming majority of Americans, but the reality is people with disabilities, racial minorities and economically challenged individuals face far more obstacles to voting than most voters. Unsubstantiated allegations of mass voter fraud were circulated and amplified after the 2020 presidential election and …

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55. An Anecdotal Field Guide for The Rest of Us 1:01:27

2+ y ago1:01:27

1:01:27

In this new book, Tracee offers you the tips she remembers, stories of adversity and success, to document her personal battles with self and others in a position to grant or deny life-saving tools, equipment, and the access to freedom we all hold dear but often take for granted. The author encourages all of us to use the Field Notes daily to meet s…

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54. Vitalxchange - The Uber of Diability Resources 1:12:05

2+ y ago1:12:05

1:12:05

If you set out to climb the Himalayas it would be wise to hire a sherpa. Why, you ask? Because the climb may be treacherous and your mistakes very costly! A sherpa has been on the path many times and knows how to climb to the top with positive results. How much do you want to leave to chance? The same may be said about navigating the challenges and…

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53. A Deep Dive into Courage 41:54

2+ y ago41:54

41:54

There is a gulf between changing a world and changing THE world, and the difference is the people who help build the steam needed to bring about true and lasting change to the way a society approaches a topic. Earlier this season we discussed the life and advocacy of Bill Rush and some of the people around him on his quest for a life on his terms. …

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52. Advocacy and Education for Independence 46:51

2+ y ago46:51

46:51

Affordable, accessible housing, transportation and internet availability are serious issues for people with disabilities in just about every state in the USA. It is especially problematic in rural areas. As if these challenges weren't enough, the crew of the Disability Resource Network in Huntsville Alabama opened for business during the early days…

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51. It's BROKEN - Let's Fix It: Support the NADSP 56:05

2+ y ago56:05

56:05

Imagine engaging an architect to create plans for the perfect house to fill all your needs.... You are excited about turning this dream into a reality…but then discovering there is no one to do the excavation for the foundation. Also, there is only one carpenter to work on the frame...and that craftsman can only work 12 hours a week on your project…

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50. Faith Love & Courage Pt 3 1:17:30

3y ago1:17:30

1:17:30

Episode 3 - Life together and Changing the World Most movements for social change are identified with a few prominent and well-known leaders. For instance, people like Martin Luther King, John F Kennedy, and Robert Kennedy, among others, are associated with the Civil Rights movement in the USA. Nelson Mandela is a name synonymous with the abolition…

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You are the Ocean 3:40

3y ago3:40

3:40

You are the Ocean. How do I convince a drop that it is part of the ocean and that it moves with the ocean as one? How does one convince an individual that he is part of the Universe and that he moves ahead with the Universe as One?

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Ek Boond Samudra mein - Hindi Short podcast by Pooja of Palak and Pooja 1:26

3y ago1:26

1:26

Ek Boond Samudra mein - Hindi Short podcast by Pooja of Palak and Pooja Join us on all social media platforms. We are @PalakandPooja

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49. Faith, Love & Courage Pt 2 1:28:34

3y ago1:28:34

1:28:34

Episode 2 - Love and the Audacity of Change Most movements for social change are identified with a few prominent and well-known leaders. For instance, people like Martin Luther King, John F Kennedy, and Robert Kennedy, among others, are associated with the Civil Rights movement in the USA. Nelson Mandela is a name synonymous with the abolition of a…

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48. Faith, Love & Courage Pt 1 57:16

3y ago57:16

57:16

Family, Faith, and the Seed of Self Advocacy Most movements for social change are identified with a few prominent and well-known leaders. For instance, people like Martin Luther King, John F Kennedy, and Robert Kennedy, among others, are associated with the Civil Rights movement in the USA. Nelson Mandela is a name synonymous with the abolition of …

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47. Caring About and Beyond 54:49

3y ago54:49

54:49

It is not ever comfortable discussion what happens after someone dies. But when it comes to the death of care providing parents conversations need to happen and plans must be made. Legal, financial and Medicaid Planning are important, of course, but living a full life is more than providing these core necessities. Life as we know it (and aspire to …

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46. The Many Flavors of Medicaid Waivers 301 - Children's Waivers & Independent Facilitation 59:12

3y ago59:12

59:12

When you have a child with a developmental or intellectual disability your life gets complex. Often it becomes overwhelming. Navigating a path to find the right resources is essential. Today's episode is about two Medicaid Waivers that provide valuable supports, The Michigan Waiver for Children and the Michigan Waiver for Children with Serious Emot…

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45. The Many Flavors of Medicaid Waivers 201 40:00

3y ago40:00

40:00

Imagine yourself on a vacation to a country where your native language is not spoken. Let's say Portugal. You do not know how to speak or read Portuguese, but you are given a map to help you get around.... but the map (of course) is printed in Portuguese. You can see the roads and have a vague idea of where you are going, but the map does not tell …

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44. The Many Flavors of Medicaid Waivers 50:20

3y ago50:20

50:20

Our show today is “The Different Flavors of Medicaid Waivers” …. but you are also going to hear a lot of discussion about person-centered-planning (PCP) and the proper use of two assessment tools associated with person centered planning process... the Supports Intensity Scale (SIS) and the Psycho-Social Assessment (PSA). Why?? Because assessment to…

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YOU EXIST IN IS 3:55

3y ago3:55

3:55

WHERE ARE YOU LOOKING FOR ME? I AM RIGHT HERE AROUND YOU IN YOU THROUGH YOU IN YOUR SILENCE YOU EXIST IN ME - IN ISNESS We all exist in IS - Everything that is, exists in IS! You may see our first video on IS for a basic understanding of this concept. There is an Unknown space that exists – out there and within us. We call it #Unknown because there…

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Accessing Beyond - Couple of Tools shared by author sisters Palak and Pooja 5:27

3y ago5:27

5:27

Accessing Beyond - Couple of Tools shared by author sisters Palak and Pooja

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43. Navigating The Risks/Rewards of Relationships 1:06:01

3y ago1:06:01

1:06:01

Growing up can be hard. Especially the teenage years. And even more so if the teenager in question has social skill deficits. As humans we are all "hard wired" for relationships with other humans. Individuals living with autism often want to develop skills necessary to make and keep friends. They need to learn the skills necessary to navigate vario…

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Being Here Now, an introduction to NLAWKI's Mindful Moments 19:56

3y ago19:56

19:56

I'm probably showing my age...but some of you might remember the routine of "defragging" your computer to allow it to work more quickly and efficiently. It was once described to be as allowing your computer to take some time to put files away and "clean up" it's desk. This was it was able to work better. Well, wouldn't it be nice to defrag your min…

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Life As We Know It Podcast - with Danny Vela and Jerry Sanchez 1:10:19

3y ago1:10:19

1:10:19

Danny Vela is one of the most well recognized and respected community leader in McAllen Texas. Danny Vela owns Lee's Pharmacy and has been one of the most tenured school board member for the McAllen ISD. Danny talks about his successes, challenges and perspectives on life. Produced by ImageHouse imagehousemedia.com…

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42. The Right Place To Land - Finding the Best Nest 47:11

3y ago47:11

47:11

"There's no place like home!" In the Wizard of Oz Dorothy said these words and clicked the heels of her ruby slippers three times. Instantly she was transported back to her farm home in Kansas. This makes for an enduring story...but getting into the right home presents a little more of a challenge today. Especially if you live with an intellectual …

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41. Forgiveness: The Pathway from Emotional Pain to Growth 1:01:38

3y ago1:01:38

1:01:38

Everyone has heard the phrase "forgive and forget." That isn't always possible, or even advisable. It is important to remember. To recall emotional pain that has played a destructive role in the course of your life and in your relationships. With these memories it becomes even more important to forgive, or to ask forgiveness, so you may convert the…

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IS - an Upcoming Book 30:38

3y ago30:38

30:38

A conversation between authors Palak and Pooja with Ritu Kartha and Harsha Pahuja on their upcoming book - IS

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40. Finding The Emerald City 1:22:16

3y ago1:22:16

1:22:16

Remember Dorothy and the Wizard of Oz? She had an impossible task. First retrieve the broom stick of the Wicked Witch and deliver it to the Wizard of Oz who would grant her wish to return to her home in Kansas. Doesn't life feel like that sometimes? Impossible task? Improbable goals? Flying Monkeys all around you? Attempting to find and secure affo…

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39. Letting Go and Letting Grow 42:25

3y ago42:25

42:25

It's hard to let go of things...and I have a garage filled with items I should have let go of years ago. But I keep thinking, maybe I'll find a use for this "thing." But I hardly if ever do. It is much different letting go of people, but it is natural and necessary when raising children to "let them go" in order to "let them grow." We learn by faci…

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38. A Short Bridge to Inclusion 56:08

3y ago56:08

56:08

Bridges create opportunities for connection. They empower travel to visit people and places that might otherwise be inaccessible. And they often unite people together to pursue common goals. Some are span enormous distances while others are measured in feet and inches. Today’s show is about one of the world’s smallest bridges. But it may be one of …

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37. The Risks of "Integrated Care" 1:19:10

3y ago1:19:10

1:19:10

The Space Shuttle, with over 2.5 million parts, 230 miles of wire and 1,060 plumbing valves was once described as the most complex "machine" ever made by man. For successful results it's mission requirements complex systems and a flawless degree of accountability were essential. Flaws in those complex systems resulted in the disasters of Columbia a…

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36. Charting The Labyrinth of Planning and Services 57:11

3y ago57:11

57:11

Most of us at one time or another have driven down a dark road and found ahead of us a deer transfixed, staring into our headlights? Have you ever felt like you have something in common with the deer? In the disability community we face a labyrinth of rules, regulations, benefit levels, service options, waivers, forms and...well you get the picture…

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35. A Proven Recipe for Inclusive Employment 48:29

3+ y ago48:29

48:29

"You can't age out of being in a family" according to Rabbi Levi Shemtov, Executive Director of the Friendship Circle in Bloomfield Michigan. Over the past 27 years as children within the Friendship Circle have grown so has the capacity of Friendship Circle to meet their employment needs and enhance the quality of their lives. The Soul Cafe and Sou…

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34. A Party with a Purpose - Coordinating Goals and Support for a Self Determined Life 1:11:28

3+ y ago1:11:28

1:11:28

Today’s episode is an interview with Annette Downey, the Executive Director of Community Living Services, an organization that provides Independent Support Coordinators, (abbreviated as ISCs) for Wayne, Oakland, Macomb, and Kent Counties in Michigan. And as of July 2021, CLS has expanded their services to Ottawa County. For non-Michiganders tuning …

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You Cannot Deny the Existence of IS 9:30

3+ y ago9:30

9:30

There is an Unknown space that exists – out there and within us. We call it #Unknown because there is not much known about it. Our five senses cannot perceive any thing in it hence we say that there is 'No Thing' in that space. This unknown and so called empty space exists between you and me, him and her, they and them. This unknown space also exis…

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Special 4. The Art of Conversation via Chat Chains 49:47

3+ y ago49:47

49:47

We're back and we've got a new trick! NLAWKI Returns a couple weeks ahead of our OFFICIAL SEASON 2 START DATE with a special release about a new way to learn conversation skills - CHAT CHAINS! Check out the links below and make sure you tune in to our official Season 2 startup on the 28th of July! Most neurotypical individuals learn to communicate …

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33. Nothing About Me Without Me 2; Finding Strength in Circles 56:08

3+ y ago56:08

56:08

Imagine growing older...but never growing up. Never being allowed to make decisions or choices that influence your future, or bring you happiness. Never being able to "grab the brass ring" because the person(s) who make decisions on your behalf think it's either too risky, or beyond your ability to achieve. What a small and lonely world to live in!…

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32. Nothing About Me Without Me; Understanding the Dignity of Risk Pt 1 1:01:27

3+ y ago1:01:27

1:01:27

We all seek advice from time to time. Especially when confronted with a challenge that is unique to us. Sometimes that trusted advisor is a friend who has expertise in solving the problem we face, or a professional who can help us navigate our way to a desired outcome. And if all else fails, today we have YouTube tutorials in just about everything …

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Life As We Know It Podcast with guest Natasha Tobola del Barrio 56:14

3+ y ago56:14

56:14

"Your life is always moving in the direction of your strongest thoughts." Natasha is a strong believer in this quote and when you hear her story, you'll understand why.Natasha Tobola del Barrio is the CEO of Bert Ogden Auto Group, the largest privately held automotive group in South Texas and one of the largest in the nation. She's also a loving mo…

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31. Finding a Vision for Community's Future 52:51

3+ y ago52:51

52:51

Community (Cambridge Dictionary) “all the people who live in a particular area, or a group of people who are considered as a unit because of their shared interests or background.” Vision (Cambridge Dictionary) “the ability to imagine how a country, society, industry, etc. could develop in the future and to plan for this.” Everything starts with a V…

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30. How to Bridge The Gap Between Disability and Employment 42:52

3+ y ago42:52

42:52

Everyone benefits when all are included! Many of us have experienced challenges obtaining employment. If you have a developmental or intellectual disability those challenges take on a whole new dimension. You have skills. You have abilities and interests. You want to “give back” to your community and be accepted for who you are. But too often the w…

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"Life As We Know It" Podcast with guest Michael Fallek 1:44:23

3+ y ago1:44:23

1:44:23

Michael Fallek is an attorney turned businessman by trade but a family man at heart. Though he and his partners have contributed a ton of development properties in and around McAllen, Texas, you may not have ever heard of Michael because he has always been a very humble and practical guy. He's not loud or flashy; in fact, this dude is friendly and …

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29. Let's talk about Disability, Housing, and the Awesome Power of Coalitions 40:20

3+ y ago40:20

40:20

Our culture places great emphasis on rugged individualism. Our heroes and role models are risk takers who face overwhelming odds and obstacles but, in the end, through grit and determination come out on top. They prevail! (with considerable help from those working behind the scenes) But behind every great and lasting accomplishment is a group of in…

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28. Let's Talk About Changing your Dreams... 1:05:06

3+ y ago1:05:06

1:05:06

Everyone wants to live a beautiful life, but in every life we are faced with challenges. Many of those challenges involve processing grief over the loss of a loved one, the loss of a relationship, or the loss of the dreams we had set for our lives. For parents providing care for children with developmental and intellectual disabilities there exists…

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27. You Know You're thinking about it: Legal Planning & Disability 49:14

3+ y ago49:14

49:14

Legal planning is intimidating, but nobody wants to leave others on shaky ground. The key is a Well Laid Foundation, and friend of the show Dan Blauw is here to help us understand some of the important parts of that foundation building. Please stop by this episode's BLOG for further information. Take a look at some of the other episodes from DANIEL…

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