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Το περιεχόμενο παρέχεται από το Chris and Elizabeth Ouellette and Elizabeth Ouellette. Όλο το περιεχόμενο podcast, συμπεριλαμβανομένων των επεισοδίων, των γραφικών και των περιγραφών podcast, μεταφορτώνεται και παρέχεται απευθείας από τον Chris and Elizabeth Ouellette and Elizabeth Ouellette ή τον συνεργάτη της πλατφόρμας podcast. Εάν πιστεύετε ότι κάποιος χρησιμοποιεί το έργο σας που προστατεύεται από πνευματικά δικαιώματα χωρίς την άδειά σας, μπορείτε να ακολουθήσετε τη διαδικασία που περιγράφεται εδώ https://el.player.fm/legal.
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Support. Love. Family. with Julia and Herb Beron

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Manage episode 338097030 series 2980048
Το περιεχόμενο παρέχεται από το Chris and Elizabeth Ouellette and Elizabeth Ouellette. Όλο το περιεχόμενο podcast, συμπεριλαμβανομένων των επεισοδίων, των γραφικών και των περιγραφών podcast, μεταφορτώνεται και παρέχεται απευθείας από τον Chris and Elizabeth Ouellette and Elizabeth Ouellette ή τον συνεργάτη της πλατφόρμας podcast. Εάν πιστεύετε ότι κάποιος χρησιμοποιεί το έργο σας που προστατεύεται από πνευματικά δικαιώματα χωρίς την άδειά σας, μπορείτε να ακολουθήσετε τη διαδικασία που περιγράφεται εδώ https://el.player.fm/legal.

Julia and Herb Beron share a moving story of courage, resilience, and autonomy.

Julia's never known life without CMT. Having had falls, foot and knee surgeries, hearing loss, and a diagnosis of Type 1 diabetes, Julia, with her family's unconditional support, keeps moving forward with grace, independence, and self-confidence. Hear her story. Learn her secrets. Watch her future. It's going to be amazing!

Highlights

  • Who is Sally and how did she give Julia so much freedom?
  • The best day of her life – where's the cat?
  • Julia gives dating advice. You are going to love it!
  • Rachael's Practicality + Herb's Emotional Intelligence = Julia's Brilliance
  • If you had one wish? You won't believe their answers.

*Herb Beron is a member of the CMTA Board of Directors and a long-time supporter of CMTA.

*Julia Beron is a previous member of the Youth Council, Co-Illustrator of the book, Walk A Mile In My Braces, and Co-Leader of the CMTA COMPASS Group for Young Adults with CMT.
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to info@cmtausa.org. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org

For more information about CMT and to support the CMTA, please visit www.cmtausa.org

  continue reading

35 επεισόδια

Artwork
iconΜοίρασέ το
 
Manage episode 338097030 series 2980048
Το περιεχόμενο παρέχεται από το Chris and Elizabeth Ouellette and Elizabeth Ouellette. Όλο το περιεχόμενο podcast, συμπεριλαμβανομένων των επεισοδίων, των γραφικών και των περιγραφών podcast, μεταφορτώνεται και παρέχεται απευθείας από τον Chris and Elizabeth Ouellette and Elizabeth Ouellette ή τον συνεργάτη της πλατφόρμας podcast. Εάν πιστεύετε ότι κάποιος χρησιμοποιεί το έργο σας που προστατεύεται από πνευματικά δικαιώματα χωρίς την άδειά σας, μπορείτε να ακολουθήσετε τη διαδικασία που περιγράφεται εδώ https://el.player.fm/legal.

Julia and Herb Beron share a moving story of courage, resilience, and autonomy.

Julia's never known life without CMT. Having had falls, foot and knee surgeries, hearing loss, and a diagnosis of Type 1 diabetes, Julia, with her family's unconditional support, keeps moving forward with grace, independence, and self-confidence. Hear her story. Learn her secrets. Watch her future. It's going to be amazing!

Highlights

  • Who is Sally and how did she give Julia so much freedom?
  • The best day of her life – where's the cat?
  • Julia gives dating advice. You are going to love it!
  • Rachael's Practicality + Herb's Emotional Intelligence = Julia's Brilliance
  • If you had one wish? You won't believe their answers.

*Herb Beron is a member of the CMTA Board of Directors and a long-time supporter of CMTA.

*Julia Beron is a previous member of the Youth Council, Co-Illustrator of the book, Walk A Mile In My Braces, and Co-Leader of the CMTA COMPASS Group for Young Adults with CMT.
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to info@cmtausa.org. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org

For more information about CMT and to support the CMTA, please visit www.cmtausa.org

  continue reading

35 επεισόδια

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