Hunt the Experience
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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to ...
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End of Life: The Caregiver Perspective, Part 2Από τον Help4HD
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There comes a time to know when to quit, this is that episode. I won’t get into all the details here but I did say when Nick and I restarted recording episodes that if I decided it was time to stop I would be sure to let everyone know this time instead of just disappearing. In this episode we announce the winner of Nick’s hardcover edition of Clums…
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For more information about the UF Fixel Institute located in Gainesville, FL, please click here.Από τον Help4HD
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Records and Recurves
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Nick and I spend a bit of time catching up and then jump into a discussion about vinyl records. I know this is a bit out of the ordinary but we had spoken at the end of our last episode about how vinyl records had made such a comeback and the similarities between traditional archery/bowhunting and vinyl records. As you will hear we are a bit passio…
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HDYO Ambassador: MollyΑπό τον Help4HD
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To read the blog post BJ Viau wrote, please click hereΑπό τον Help4HD
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HDYO Ambassador GemmaΑπό τον Help4HD
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"Bri" joins me to discuss what it's like being gene-positive for HD and a scientist doing HD research.Από τον Help4HD
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Nick and I spend a bit of time having a discussion about a recent Facebook post that got our attention. The post we are talking about asked the question: “would our great grandfathers would be proud of the pursuit of trophy whitetails by hunters today?”. There was a good bit more unpack with that post and Nick and I just had a conversation much lik…
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End of Life: The Caregiver PerspectiveΑπό τον Help4HD
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We are Stronger TogetherΑπό τον Help4HD
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Please contact Jenna Heilman if you're interested in learning more about the HDYO Ambassadors program.Από τον Help4HD
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Please visit hdgenetics.com for more information.Από τον Help4HD
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HD Uncut with GinaΑπό τον Help4HD
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As a way to wrap up HD Awareness Month, let's #LightItUp4HD on social media tomorrow! Share a video or photo of you with blue and/or purple glow sticks tomorrow. Make sure to use #LightItUp4HDandJHD and/or #2024LightItUp4HD. If you want, also share why you're lighting it up for HD/JHD.Από τον Help4HD
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Nick and I spend a bit of time catching up on spring activities…….Nick is off to an interesting start to 2024! Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also appreciate ideas for future podcasts and feedback on this or other episodes. So feel free to reach out to me at the email address…
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Recap of my visit with UniQure for HD Awareness MonthΑπό τον Help4HD
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Thom Hart is the Director of Outreach with the Critical Path Institute (C-Path), which is a nonprofit created by the FDA to "improve the drug development process. It operates as a neutral third party to enable scientists from the regulated industry and international regulatory agencies to work together with scientists from academia and patient grou…
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For more information about the HDYO Ambassadors program, please visit www.hdyo.org.Από τον Help4HD
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With recent events in the traditional archery community Nick and I both felt we needed to reflect on time spent with individuals no longer with us and their impact on the sport. This episode is dedicated to the memory of Jerry Brumm, he will be greatly missed. Please subscribe to the podcast on your favorite podcast platform and leave a rating and …
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I recently attended the World Orphan Drug Congress in Boston, MA. The audio for this episode is from my YouTube video that you can find here: Dying to LiveΑπό τον Help4HD
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HD Uncut with Meredith Patterson
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Meredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/ She also has a podcast called "Confessions of an Actress". This week on her podcast, she shared about Huntington's Disease as a way to raise awareness. Y…
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T.O. Episode 145 – Split bamboo, trout in every net and no good deed….
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Nick joins me to chat about the recent NC Trout Season opener from this past weekend. Great times with good friends and some good “fish tales” came out of the trip along with a last minute mishap. As always, we hope you enjoy. Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also appreciate id…
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Piere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time, which allows access to structural information about pathogenic and non-pathogenic huntingtin variants with…
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Jennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence for key stakeholders including regulators, payers, and providers, and patients. Dalzanemdor is being evalu…
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Please visit www.hdyo.org for more informationΑπό τον Help4HD
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While I am sitting in a hotel room in Houston Texas, Nick and I spend some time chatting about hunting small game, mainly squirrels, and a return to the hunting that got many of us into the woods at an early age. We hope you enjoy. Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also apprecia…
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Please visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.Από τον Help4HD
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Samantha and I got to participate in a focus group together. Here our thoughts about research and more!!Από τον Help4HD
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Nick and I chat about his new book, “Clumsy Predators” and he asks me for the full story behind “Dammit Carl”. Please subscribe to the podcast on your favorite podcast platform and leave a rating and review. I would also appreciate ideas for future podcasts and feedback on this or other episodes. So feel free to reach out to me at the email address…
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HDYO Ambassadors Series: Ep 1. with RobynΑπό τον Help4HD
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T.O. Episode 142 – 2023 Revisited
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Nick rejoins me for a podcast recording session for the first time in over a year. We spend the time catching up and sharing insights into our 2023 Whitetail seasons. I personally made it out very little with a longbow in ’23 but I did return to hunting with both Blackpowder and firearms in 23 and Nick shares some details about multiple opportuniti…
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Happy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the HD Community.Από τον Help4HD
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Happy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with HD, how they found each other, and how they continue to support one another while caring for their k…
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It’s been quite some time since a new episode was dropped. In this episode I discuss why the gap, what to expect going forward and a few other things. Nick will rejoin me on the next episode, I recorded this one solo just to set the stage for what is to come. I hope you enjoy and another episode will be headed your way in a week or two. Please subs…
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To follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We ExistΑπό τον Help4HD
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Please visit the Hereditary Disease Foundation website to find out more information.Από τον Help4HD
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If you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click HereΑπό τον Help4HD
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HD Uncut, Ep. 11, with Dina De SousaΑπό τον Help4HD
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Jamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.Από τον Help4HD
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Greater than HD in 2024Από τον Help4HD
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HD Uncut, Ep. 10 with LeahΑπό τον Help4HD
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If you'd like to follow Christy on social media, you can find her here: Facebook - www.facebook.com/ChristyDearien Instagram - @christydearienΑπό τον Help4HD
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If you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also send it directly to her email at anna@help4hd.orgΑπό τον Help4HD
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For more information about all that Help 4 HD is doing, please visit the website - www.help4hd.orgΑπό τον Help4HD
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Coping During the Holidays with Melissa W.Από τον Help4HD
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Lauren shares her feelings about the holidays and her recent birthday.Από τον Help4HD
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Dr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.Από τον Help4HD
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If you'd like to learn more about HD-CAB, including how to become a member, please visit the website here. You can also contact Jenna Heilman at jenna@hdyo.org.Από τον Help4HD
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Rita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, being responsible for developing the protocol and study set up. Before USMA, Rita was in the Product Develo…
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