Τα καλύτερα Vitiligo podcast (2024)

1
Pharma, Startups, and AI: From 2024 to 2025 (Ep. 17) 29:38

3d ago29:38

29:38

In the 17th episode of Deep Dive in Vitiligo, we wrap up the year with a thoughtful analysis of the vitiligo drug development landscape, exploring the breakthroughs, challenges, and opportunities shaping the future of care. From pharmaceutical giants to AI-driven startups, we delve into the science, strategies, and collaborations pushing the bounda…

1
Merry Christmas from our VITFriends family to your family! 47:00

8d ago47:00

47:00

Merry Christmas and a Bright, Happy and Healthy New Year to you and your! Love and Blessings!Από τον VITFRIENDS

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Mind, Body, and Ayahuasca: An Uncharted Approach to Vitiligo (Ep. 16) 53:29

6d ago53:29

53:29

In this podcast episode Mind, Body, and Ayahuasca: An Uncharted Approach to Vitiligo, we venture into the intersection of ancient Amazonian medicine and modern science to explore innovative avenues for vitiligo treatment. Vitiligo, an autoimmune condition leading to skin depigmentation, presents both physical and psychological challenges. Tradition…

1
Inside Pharma: How AI and Patient Advocacy Are Shaping the Future of Drug Development (Ep. 15) 15:19

19d ago15:19

15:19

In this episode, we uncover the strategies and innovations behind recent pharmaceutical breakthroughs. Despite intense competition and the shifting landscape of Medicare Part D, Incyte continues to lead with strategic maneuvers and a patient-centered approach. We’ll delve deeper into Opzelura, an FDA-approved treatment for AD and vitiligo, shedding…

1
Vitiligo and Pregnancy: The Complex Connection (Ep. 14) 10:04

26d ago10:04

10:04

How does pregnancy affect vitiligo, and can vitiligo influence pregnancy outcomes? This episode unpacks the intricate relationship between the two, exploring research on how hormonal changes—particularly cortisol and IL-10—can stabilize or worsen vitiligo symptoms. We also address concerns about potential pregnancy risks, including an increased lik…

1
The Journey with Vitiligo - Our Guest is Shameka Pittman of Indiana 43:00

1M ago43:00

43:00

Tell us about your Vitiligo JourneyΑπό τον VITFRIENDS

1
Beyond the Waitlist: Skinopathy and VRF are Improving Skin Care (Ep. 13) 14:15

1M ago14:15

14:15

Did you know the average wait time to see a dermatologist in Ontario, Canada, is over 180 days? And in northern regions, it can stretch up to two years! The call for innovation has never been louder—and AI is stepping up in a big way. In this episode, VRF teams up with Skinopathy to tackle some big dermatology pain points—endless wait times, questi…

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Regular Exercise as an Add-On to Vitiligo Therapy (Ep. 12) 9:33

1M ago9:33

9:33

Could regular exercise be the key to managing vitiligo? In this episode, we explore the surprising connection between fitness and this complex autoimmune condition, shedding light on how lifestyle changes may play a pivotal role in treatment. We dive into the science of vitiligo, examining genetics, oxidative stress, and immune dysfunction, while h…

1
How and Why Gen Z Engages with Online Information 14:24

2M ago14:24

14:24

Από τον Yan Valle

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Medical Data in the Age of AI: Should You Trust Grok with Your Health Scans? (Ep. 11) 9:09

2M ago9:09

9:09

In this episode, we dive into Elon Musk’s recent call for X users to submit their medical scans—X-rays, PET scans, MRIs, and more—to his new AI chatbot, Grok, to help improve its accuracy. Musk claims Grok’s capabilities are already impressive and will only get better with user data. But is it safe to share your health data with a public AI system?…

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Why and How To Start Vitiligo Support Group? (Ep. 10) 7:49

2M ago7:49

7:49

Growing up, I watched my cousin’s silent struggle with vitiligo—a journey that took a turn for the better when she found a supportive community. This episode shines a light on the life-changing impact of vitiligo support groups, where connection and empathy offer far more than just a listening ear. Through inspiring personal stories, like that of a…

1
VitFriends Medical Student Volunteers: Alexis Arza and Mary Tidwell 35:00

2M ago35:00

35:00

Alexis and Mary are VitFriends volunteers who sit down with lead medical student, Kristin Tissera to discuss their own experiences with vitiligo.Από τον VITFRIENDS

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Navigating Vitiligo Patient Journey Map (Ep. 9) 19:01

2M ago19:01

19:01

Navigating vitiligo can feel like trying to find your way through the New York City subway on a Friday eve. But just like any journey, it’s all about finding the right path for you. In this episode of Deep Dive, we invite you to explore the many-layered experiences of living with vitiligo, discussing both the emotional and logistical challenges. We…

1
Outside the Box: Google’s Cracking Down on AI Cheaters 12:02

2M ago12:02

12:02

Google’s been working on something cool for AI transparency: an invisible watermark in AI text called SynthID-Text. They’ve already applied it to 20 million responses from their Gemini chatbot, and users couldn’t tell the difference. This watermark is like a secret stamp that helps flag AI-generated content, opening the door for others to join in a…

1
Beyond the Surface: What Your Skin Reveals About You (Ep. 8) 10:50

2M ago10:50

10:50

What if your skin was more than just a physical barrier? In this thought-provoking episode, we delve into the spiritual and cultural dimensions of skin, exploring how it reflects your inner emotions, beliefs, and even your mental state. From ancient shamanic practices to cutting-edge psychoneuroimmunology, we uncover how skin conditions have long b…

1
An Interview with Vitiligo Researcher, Dr. Todd Pearson 17:00

2M ago17:00

17:00

An Interview with Vitiligo Researcher, Dr. Todd Pearson who sits down with our lead medical student, Kristin Tissera to discuss current and future projects in vitiligo research. VIGOR Study: https://vigor.umassmed.edu/vigor/s/?language=en_USΑπό τον VITFRIENDS

1
Nailed It: The Surprising Vitiligo Connection (Ep. 7) 14:44

2M ago14:44

14:44

Could your nails be revealing more about your health than you think? In this episode, we uncover the surprising connection between vitiligo and nail health, guided by a fascinating clinical study that shows how people with vitiligo often experience unique nail changes, such as longitudinal ridging and absent lunula. With input from dermatologists a…

1
The Hidden Burden of Vitiligo: Research and Real-World Stories (Ep. 6) 13:40

2M ago13:40

13:40

In this episode, we delve into the profound impact vitiligo has on self-esteem, social interactions, mental health, and overall quality of life. Starting with the basics, we unpack the nature of this autoimmune condition, emphasizing that it affects people of all ethnicities and genders while highlighting the emotional toll of its unpredictable tre…

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The Vitiligo Diet: Can What You Eat Heal Your Skin? (Ep. 5) 12:39

2M ago12:39

12:39

Discover how diet could play a key role in managing vitiligo in this insightful episode. We delve into the science of oxidative stress and the potential benefits of antioxidants like vitamins C, D, and B12 in supporting skin health. From polyphenol-packed coffee, tea, and red wine to the power of fiber-rich whole grains, we explore how specific foo…

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1 in 100: Understanding Vitiligo’s Impact on Body and Mind (Ep. 4) 10:16

2M ago10:16

10:16

Join us as we untangle the complexities of vitiligo treatment and its far-reaching effects on patients’ lives. From the frustrating trial-and-error of therapies like topical corticosteroids, calcineurin inhibitors, systemic steroids, and phototherapy to the emotional toll of the condition, we explore how vitiligo is far more than skin deep. A recen…

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Vitiligo Uncovered: Who, Where, and Why? (Ep. 3) 9:47

2M ago9:47

9:47

Ever wondered how many people are newly diagnosed with vitiligo each year? In the U.S. alone, the number is around 74,600! In this episode, we unpack the difference between incidence (new cases) and prevalence (total cases), showing how these numbers evolve from childhood to adulthood—don’t worry, it’s simpler than it sounds! We also explore how vi…

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From DNA to AI: Progress and Hope in Vitiligo Research (Ep. 2) 12:46

2M ago12:46

12:46

Discover the future of vitiligo treatment in our latest episode, where we spotlight cutting-edge therapies transforming care for this complex condition. From Incyte's Opzelura, the first FDA-approved drug for vitiligo, to Temprian Therapeutics’ DNA-based treatments and Clinuvel’s synthetic hormones for full-body repigmentation, we explore the innov…

1
Welcome to Deep Dive In Vitiligo! (Ep. 1) 6:42

2M ago6:42

6:42

In a world where even dogs have podcasts, it’s time for vitiligo to have its own voice—enter Deep Dive in Vitiligo, a weekly news digest from the frontiers of medicine and science, brought to you by Yan Valle, CEO of the Vitiligo Research Foundation. In this debut episode, we set the stage for what this podcast is all about: shedding light on the l…

1
Can Vitiligo Be Cured? Exploring the Latest Advancements in Treatment (2024) 10:16

3M ago10:16

10:16

In this episode of Vitiligo Voices, we dive into one of the most common questions about vitiligo: Can it be cured? Host Nathalie Pelletier discusses the latest advancements in vitiligo treatment, including FDA-approved topical therapies like ruxolitinib, promising oral JAK inhibitors such as upadacitinib, and cutting-edge gene therapy research. We …

1
Akenna's Journey with Vitiligo 1:00:00

3M ago1:00:00

1:00:00

Akenna's journey with VITILIGO!Από τον VITFRIENDS

1
The Vitiligo Journey of Tiffany Stancil of NC 48:00

4M ago48:00

48:00

Who is Tiffany??? (Wife, Mother, Model, etc...) When were you diagnosed? Support system Treatment Etc....Από τον VITFRIENDS

1
Vitiligo Journey of special Guest Stephanie Jenkins 58:00

4M ago58:00

58:00

Who is Stephanie How long with Vitiligo TREATMENT Your support system Where are you on your vitiligo journey today Your BOOK Etc.....Από τον VITFRIENDS

1
Sharing your Vitiligo Awareness Month Experience 44:00

6M ago44:00

44:00

CALL - IN Tell us how your June 2024 has been Did you attend WVD and your experience How are you continuing to spread awareness How is you OPZELURA Treatment experience.Από τον VITFRIENDS

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An Interview with Pediatric Dermatologist, Dr. Anna Cristina Garza-Mayers 13:00

8M ago13:00

13:00

Pediatric Dermatologist, Dr. Anna Cristina Garza-Mayers sits down with our medical student leader, Kristin, to discuss treating vitiligo in children, and what's on the horizon in treatments and in research.Από τον VITFRIENDS

1
Anthony's Vitiligo Journey 59:00

8M ago59:00

59:00

From Tampa FL, here's Anthony Vitiligo JourneyΑπό τον VITFRIENDS

1
An Interview with VITFriends First Medical Advisor, Dr. Vaneeta Sheth 25:00

9M ago25:00

25:00

Dr. Sheth sits down with Kristin Tissera, our lead medical student to discuss her interest in vitiligo, her work with VITFriends, and what's on the horizon for vitiligo treatment.Από τον VITFRIENDS

1
Happy Easter! 22:00

9M ago22:00

22:00

Wishing you and your family a Happy Easter, as we REMEMBER the reason and the sacrific of the crossΑπό τον VITFRIENDS

1
The Journey with Vitiligo and Treatment with Alicia Roufs 54:00

10M ago54:00

54:00

Meet Alicia Roufs our Minnesota Leader and VITFriends Marketing Rep.Από τον VITFRIENDS

1
The journey with Vitiligo Treatment with Lisa Toner 1:00:00

11M ago1:00:00

1:00:00

The journey with Vitiligo The journey to getting Treatment The journey with OpzeluraΑπό τον VITFRIENDS

1
Todd Meadows Vitiligo Journey 1:09:00

12M ago1:09:00

1:09:00

Join Connecticut VITFriends Leader Millicent Meadows interview her brother Todd Meadows about his Vitiligo Journey.Από τον VITFRIENDS

1
Vitiligo Study PSA and Update 6:00

12M ago6:00

6:00

Greetings. Happy New Year! I'm back to share a brief podcast update, provide a recap of 2023 and discuss the latest vitiligo study hosted by RTI-Health Solutions and L&E Research. Tune in for this brief update and please get involved in this study!Από τον VITFRIENDS

1
Chat and Chew with Ms. Millie 12:00

12M ago12:00

12:00

Chat and Chew with Ms. Millie and Ms. Valarie about Vitiligo.Από τον VITFRIENDS

1
Serving the VITILIGO Community - Medical Student GUEST 51:00

1y ago51:00

51:00

Who - How - When - WHY?Από τον VITFRIENDS

1
Your JOURNEY with Vitiligo - Guest Michelle Hood, Detroit, MI 59:00

1y ago59:00

59:00

Talks about her personal journey with Vitiligo.Από τον VITFRIENDS

1
The Journey with Vitiligo with Tracy of NY 38:00

1y ago38:00

38:00

How has your journey been with Vitiligo?Από τον VITFRIENDS

1
Happy Thanks giving 5:00

1y ago5:00

5:00

Holiday Greeting!Από τον VITFRIENDS

1
Living Life and Love with Matt Weckel, CEO of neonwild.com 46:00

1+ y ago46:00

46:00

Let's get wild! Neon Wild! Meet Matt Weckel, the CEO of Neon Wild. What is Neon Wild? Neon Wild is an interactive storybook app that allows your child to engage in a personalized exciting adventure. Tune in to learn more about the app and Matt's goal for inclusivity for all children, including children living with vitiligo. Don't miss this fun epis…

1
Living Life and Love with Marta and Tonja: Vitiligo and Self-Identity 1:32:00

1+ y ago1:32:00

1:32:00

What is self-identity? The recognition of one's potential and qualities as an individual, especially in relation to social context. How does vitiligo change the way you view yourself? My guests share stories about their journey while living with vitiligo. Tune in to hear this important conversation about vitiligo and self-identity.…

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Living Life and Love: Incyte Ingenuity Awards for Vitiligo Update 10:00

1+ y ago10:00

10:00

I had the privilege of hosting Todd Edwards from Incyte. We discussed the Incyte Ingenuity Awards for Vitiligo. If you have a great idea you would like to fund, consider applying for the ingenuity awards. Todd provides details about how to apply, who can apply, and important deadlines.Από τον VITFRIENDS

1
Living Life and Love with Nia Rose: Core Beliefs 1:06:00

1+ y ago1:06:00

1:06:00

Nia Rose, licensed therapist, returns to my show to discuss our core beliefs. What are your core beliefs? Are they fact or fiction? How are we impacted by what we have been taught in our youth or lessons learned throughout adulthood? Turn in to hear why this is such an important topic of discussion.Από τον VITFRIENDS

1
Living Life and Love : Shazaad Games 42:00

1+ y ago42:00

42:00

Tune in to hear Shazaad's inspiring journey with vitiligo. Everyone has a story to tell. This is his time! Some storytellers are open about the challenges that exist on their vitiligo journey, and other storytellers talk about how they have accepted and embraced the vitiligo road ahead. All stories need to be heard. We can educate the world about v…

1
Living Life and Love: The Voices of World Vitiligo Day 2023 Part One 12:00

1+ y ago12:00

12:00

Listen to the family share their experience from the World Vitiligo Day Conference 2023 in Atlanta, GA. Stay tuned for part two.Από τον VITFRIENDS

1
Living with Vitiligo: Finding Hope and Support 9:04

1+ y ago9:04

9:04

'Living with Vitiligo: Finding Hope and Support,' the episode explores the journey of living with vitiligo and offers a source of inspiration and guidance. Join us as we delve into the emotional aspects of vitiligo, sharing personal stories and expert insights on coping strategies, self-esteem, and building resilience. Discover the power of communi…

1
Living Life and Love Relationship Panel: Summer Love 1:04:00

1+ y ago1:04:00

1:04:00

What is summer love? How do you keep that special summertime relationship from fading away? What is the best season to fall in love? What's love got to do with it? Join the Relationship Panel's open discussion about finding love during the summer months, how to maintain a loving relationship, and other discussions about the big L-O-V-E.…

1
Living Life and Love with Gabriel G, New York 1:14:00

1+ y ago1:14:00

1:14:00

In this episode, Gabriel joins my show to talk about his vitiligo journey, acting, and other hot topics in the vitiligo community. Tune in to hear our perspectives about the upcoming movie God is a Bullet featuring Jamie Foxx.Από τον VITFRIENDS

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