Τα καλύτερα MyFace podcast (2024)

1
Defining Beauty: A Conversation with Celina Leroy 37:00

1M ago37:00

37:00

In this episode of myFace, myStory, host Dina Zuckerberg speaks with Celina Leroy, an artist, art teacher, and advocate born with a Port Wine Stain birthmark. Celina shares how her personal experiences have inspired her to create powerful portraits of individuals with craniofacial differences, such as birthmarks, cleft lip and palate, and Sturge-We…

1
Taking Control of the Narrative 51:26

2M ago51:26

51:26

On this month's myFace, myStory podcast episode host, Dina Zuckerberg, is joined by Amy and Lazer Schefer, a dynamic mother-daughter duo who have turned their personal challenges into a mission of advocacy and support for the craniofacial and rare disease communities. Join us as we explore their inspiring story of resilience, the challenges they’ve…

1
Two Sides to a Face: A Journey from Adversity to Advocacy 42:53

3M ago42:53

42:53

On this month's myFace, myStory podcast episode host, Dina Zuckerberg, is joined by Chelsey Peat, born with Sturge-Weber Syndrome, and recently published author of her memoir, Two Sides to a Face. She will share her journey from childhood, marked by curiosity and challenges due to her condition, to her current achievements and advocacy work within …

1
Finding Courage, Finding Self: A Conversation with David Cohen 44:18

5M ago44:18

44:18

On this month's myFace, myStory podcast host Dina Zuckerberg is joined by David Cohen, recipient of the 2024 myFace Courage Award. David talks about the dark twists on his journey of hope to acceptance of his life with Pierre Robin Sequence to who he is now. He shares what he thinks should be happening to support children and adults in the craniofa…

1
Stronger Together with Megan Gaydosh and Tiffany Kerchner 37:38

5M ago37:38

37:38

On this month's myFace, myStory podcast episode, host Dina Zuckerberg brings you an inspiring conversation with Megan Gaydosh and Tiffany Kerchner. Both Megan and Tiffany have turned their personal experiences with facial differences into powerful advocacy work, promoting self-love, acceptance, and awareness. Together, they discuss the importance o…

1
Advocacy - Be The Change: A Conversation with Melissa Tumblin 45:11

6M ago45:11

45:11

This month on the myFace, myStory podcast, Dina Zuckerberg welcomes Melissa Tumblin, a passionate advocate for the hard of hearing and deaf community. Melissa, the founder and Executive Director of Ear Community shares her remarkable journey—from navigating her child's microtia and atresia diagnosis to leading pioneering research efforts and advoca…

1
Challenging the Status Quo with Musician Austin Halls 38:27

7M ago38:27

38:27

On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Austin Halls born with Moebius Syndrome. He has incorporated his psychology degree, his journey, and his music to promote that you can love yourself and overcome any challenge that comes your way. Austin will share his journey to the musician and now model that he is…

1
Expanding the Concept of Beauty with Justin Stewart 33:09

8M ago33:09

33:09

On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Justin Stewart, who will share his journey from being born with frontonasal dysplasia with a cleft in his nose to being a signed model and the adversity and challenges he faced along the way. Through motivational speaking, he encourages others to be true to themselve…

1
Rebuilding a Life After Facial Cancer: A Conversation with Kathleen Watt 42:10

9M ago42:10

42:10

On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Kathleen Watt, an opera singer on some of the biggest stages whose life changed when she was diagnosed with bone cancer in her face. She will speak about her memoir, REARRANGED where she writes about coming face-to-face with mortality, disfigurement, having her face …

1
Don’t Stare, See Me: A Conversation 50:45

10M ago50:45

50:45

On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Naomi Levinshtein and Aaliyah Booker. They will share their personal journeys, and their advocacy work, and discuss the profound importance of the "Don't Stare, See Me" campaign for themselves and their community. - [Announcer] Welcome to "myFace, myStory: Voices fro…

1
Taking Center Stage: A Mother and Son's Journey 37:50

11M ago37:50

37:50

On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Leah Riman, who will share her journey from when her son, Logan, was born with a bilateral cleft lip and palate, blindness and other challenges to the music prodigy he is today. At the age of 2, Logan started playing the piano and he has played on some of the greatest stages…

1
Hiding Behind a Mask: A Conversation with Mary Avella 39:27

1y ago39:27

39:27

On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Mary Avella, born with Crouzon Syndrome. They will discuss how those with facial difference can hide their true selves wearing both figurative and/or literal masks, even creating a personality. What happens when you remove those masks and reveal who you are underneath? - [An…

1
Clefthood: A Conversation with Father and Son 37:30

1y ago37:30

37:30

On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Jeremy and Henry Shipp. Jeremy is a writer for the Disney Junior cartoon, Firebuds. His son, Henry, was born with a cleft lip and palate and was the inspiration - and the voice - for the car character Castor on the Clefthood episode. Jeremy and Henry will talk about their jo…

1
The Psychology of Facial Differences: A Conversation with Dr. Kathleen Bogart 43:24

1y ago43:24

43:24

On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Dr. Kathleen Bogart, who will bring us on her journey growing up with Moebius Syndrome and why she pursued a PhD in Psychology that would shape who she is today. She will share some of her research including her most recent Facial Differences Disclosure Study as well as talk…

1
Facial Difference as an Underrepresented Disability: A Conversation with Sora J. Kasuga 40:13

1+ y ago40:13

40:13

Host Dina Zuckerberg sits down with Sora J. Kasuga, Face Equality Activist, to discuss her intersectional experience of living with multiple marginalized identities including being Japanese-American, neurodivergent, queer, and having a facial difference (lymphatic malformations and venous malformations on the left side of her face). Sora shares her…

1
I've Just Seen A Face - Toolkit for Caregivers with Amy Mendillo 40:56

1+ y ago40:56

40:56

On this month’s myFace, myStory podcast, host Dina Zuckerberg is joined by Amy Mendillo – author, advocate, and parent of a child born with a cleft lip and palate. Amy discusses themes from her new parent guidebook, I’ve Just Seen a Face: A Practical and Emotional Guide for Parents of Children Born with Cleft Lip and Palate, including the roles of …

1
Lifelong Friends - A Shared Journey with Apert Syndrome 40:40

1+ y ago40:40

40:40

In honor of Apert Syndrome Awareness Month in June, host Dina Zuckerberg sits down with Morgan McGahan, Sara Pollak, and Emily Krebs - three best friends who were all born with Apert Syndrome. They will discuss their journeys, shared experiences, lifelong friendships, and overcoming the challenges associated with a craniofacial difference to achiev…

1
A Mother's Journey: A Conversation with Erin Ashayeri 29:46

1+ y ago29:46

29:46

On this month’s myFace, myStory, host Dina Zuckerberg sits down with Erin Ashayeri, the Mom of a child born with a cleft palate. When he was born, like all parents, they were thrilled, overwhelmed, and exhausted. Then to their surprise, they learned the next day that their son was born with a cleft palate. Erin shares her journey to finding support…

1
Unhiding: A Conversation with Ruth Rathblott 42:30

1+ y ago42:30

42:30

On this month's myFace, myStory podcast episode, host Dina Zuckerberg is joined by Ruth Rathblott, a TEDx and inspirational speaker, bestselling author, and an award-winning nonprofit leader. Ruth shares her journey of living with a limb difference which she spent much of her life hiding and how she has come out of hiding. She speaks about how to c…

1
Face The World - With Ava Beeler 32:52

1+ y ago32:52

32:52

On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by Ava Marie Beeler, who has been a member of the myFace Community since her first surgery at 2 years old. Ava seems like a typical young woman her age, however, she is anything but typical. In fact, she’s quite extraordinary! Ava was born with Pfeiffer Syndrome, a rare craniof…

1
The Power of Facial Difference: A Conversation with David Roche 34:49

1+ y ago34:49

34:49

On this month's myFace, myStory podcast, host Dina Zuckerberg is joined by David Roche, an inspirational humorist with a facial difference, vascular malformation. David shared details about how he overcame the shame he felt about his differences, learned to accept them, and realized that his flaws and his gifts are one and the same. Additionally, t…

1
Life with Apert Syndrome: A Conversation with Dorsey Ross 31:14

2y ago31:14

31:14

Navigating life with a craniofacial condition certainly comes with challenges. On this month’s episode of myFace, myStory, host Dina Zuckerberg is joined by Dorsey Ross - minister, podcaster, and public advocate born with Apert Syndrome. Dorsey wants us all to remember that with support, community, and faith - whether that be faith in yourself, you…

1
Matthew Joffe - My Inspiration 49:13

2y ago49:13

49:13

On this month’s myFace, myStory, host Dina Zuckerberg was joined by Matthew Joffe, born with Moebius Syndrome. Matthew is the Director of Outreach and Education at the Wellness Center at LaGuardia College/CUNY in New York. This episode was a special and intimate conversation between Dina and Matthew where they discussed his journey of living with M…

1
Redefining Beauty - A Conversation 49:06

2y ago49:06

49:06

On this month’s myFace, myStory, host Dina Zuckerberg spoke with New York makeup artist and long-time friend of myFace, Naomi Levinshtein, along with founder and director of POSITIVE EXPOSURE, a non-profit organization that promotes a more inclusive world through award-winning photography and educational programs, Rick Guidotti. This episode was a …

1
Exploring Face Equality with Phyllida Swift 47:33

2y ago47:33

47:33

myFace’s Dina Zuckerberg sat down with Appearance Activist and CEO of Face Equality International, Phyllida Swift. This episode explored Phyllida’s journey of sustaining facial scars in 2016 after a car accident, and how she turned that trauma into a triumph by becoming an Appearance Activist fighting for equality and inclusion for those with facia…

1
Meet Grace: Teenage Disability Advocate & TikTok Sensation 36:21

2y ago36:21

36:21

myFace’s Dina Zuckerberg spoke with teenage disability advocate and TikTok sensation, Grace Nova. This episode shed light on Grace’s journey of growing up with Escobar Syndrome and how her unique experiences inspired her to use social media platforms to advocate for those in the disability and the craniofacial communities by providing an inside loo…

1
My Imperfect Beauty - A Conversation with Bella Lucia 39:31

2y ago39:31

39:31

myFace’s Dina Zuckerberg spoke to author, poet, retired nurse practitioner, and advocate for the cleft community, Luci Capo Rome about her memoir, Lucia's Story: My Imperfect Beauty, written in honor of facial differences. We will follow her journey of being born with a severe and complete bilateral cleft lip and palate and how she rose above all t…

1
Advocating for Your Child: A Parent's Perspective 45:20

2+ y ago45:20

45:20

Advocating for your child with a cleft lip/palate or craniofacial condition can be challenging, but it has a critical impact on your child’s outcomes. In this episode, we heard from parents who have helped their children navigate and overcome bullying, supported their children through medical procedures and surgeries, and who have fought - and succ…

1
A Q&A With Rasheera Dopson 45:59

2+ y ago45:59

45:59

myFace’s Dina Zuckerberg sat down with author and disability justice activist, Rasheera Dopson, to discuss her memoir: Beauty With a Twist, and how her lived experiences led her to launch a brand that focuses on empowering young women living with various disabilities.Από τον myFace

1
Finding Joy in Your Journey Growing Up with a Cleft or Facial Difference 44:44

2+ y ago44:44

44:44

The journey to find confidence and self-acceptance can be a long one for those in the craniofacial community, but rewarding nonetheless. myFace’s Dina Zuckerberg sat down with guest speaker Cleft Confidence Coach & Transformational Speaker, Iva Ballou, as they discussed how Ms. Ballou helps empower those growing up with craniofacial differences by …

1
Life with a Facial Difference: A Conversation with Author Shelley Hull 49:15

2+ y ago49:15

49:15

myFace’s Dina Zuckerberg sat down with guest speaker Author Shelley Hull as they discussed Ms. Hull’s memoir, Shelley: The uplifting story of a battle to overcome disfigurement. This episode was autobiographical in nature as Ms. Hull spoke about the challenges and triumphs she dealt with while growing up living with Goldenhar Syndrome, the lessons …

1
Life After High School: Transitioning to Adulthood with a Facial Difference 49:43

2+ y ago49:43

49:43

myFace’s Dina Zuckerberg sat down with guest speakers Dr. Alexis Johns, Melvin Farmer, Naomi Levinshtein, and Ava Beeler as they talked about life after high school and the complexities that come with the journey of transitioning into adulthood for those in the craniofacial community.Από τον myFace

1
Love is in the Air: Navigating Relationships & Intimacy with a Facial Difference 52:19

3y ago52:19

52:19

myFace’s Dina Zuckerberg sat down with guest speakers Jeryl Brunner, Dean Kandilakis, Ann Piesen, and Eric Riklin as they talked about the challenges that those in the craniofacial community deal with while trying to navigate intimacy and building relationships while living with a facial difference.Από τον myFace

1
Celebrating 10 Years of Wonder 49:54

3y ago49:54

49:54

myFace’s Dina Zuckerberg sat down with New York Times best-selling author of the book Wonder, R.J. Palacio, myFace Board Member Sondra Neuschotz, and educator and parent of a young adult living with a craniofacial difference, Mary Butters, to collectively celebrate the amazing impact that Wonder has caused for the craniofacial community after being…

1
The Many Dimensions of Trauma 48:08

3y ago48:08

48:08

myFace’s Dina Zuckerberg sat down for a panel discussion with Ava Beeler, Halley Crane, Nicole Hilton, and Rena Rosen as they spoke about the nuances of trauma experienced by those living with craniofacial differences, and how the different surgeries and medical procedures they received throughout their lifetime impacted them and their families.…

1
A Face for Picasso 45:31

3y ago45:31

45:31

myFace’s Dina Zuckerberg sat down for a discussion with Ariel Henley as they discussed her new memoir A Face for Picasso, and how she is using her personal story as a platform to advocate for mainstream inclusivity for the craniofacial community and to further educate the world about the experiences of those living with facial differences to help e…

1
Bullying at Any Age 53:20

3y ago53:20

53:20

myFace’s Dina Zuckerberg sat down for a discussion with Scott Donnelly, Naomi Levinshtein, Morgan McGahan, and Patricia Simon as they relayed their personal experiences with bullying and shared tools and words of encouragement to help those in the craniofacial community dealing with it as wellΑπό τον myFace

1
NASCAR Xfinity Series Driver Joe Graf, Jr. and mother Nancy share why they're Racing for myFace 46:42

3y ago46:42

46:42

Joe Graf Jr. is a 23-year-old rising star on the racing scene who has competed in the ARCA Menards Series, NASCAR Modified Series, INEX Legends Car Series, and the INEX Bandolero Series. In 2021, he began his sophomore season in the NASCAR Xfinity Series, but Joe and his family have been supporting the craniofacial community for years. During this …

1
A Conversation with Sisters Charmaine and Sarah Cooper about Craniofacial Differences 49:21

3y ago49:21

49:21

Best-selling author, comedian, and internet sensation Sarah Cooper and her sister Charmaine Cooper, an accomplished nurse practitioner for over 2 decades, join host Dina Zuckerberg for a candid, in-depth conversation on humor, passion, and community on the next episode of our new podcast series, myFace, myStory. Born with Treacher Collins Syndrome,…

1
Panel Interview: Examining Facial Discrimination Throughout History 57:13

3+ y ago57:13

57:13

Join Dina Zuckerberg for a thought-provoking interview with Adele Capitella-Liu, Dean Kandilakis, and Jasmine Stewart as they address the history of craniofacial differences and discrimination.Από τον myFace

1
A Roundtable Discussion: The Masks We Wear 43:25

3+ y ago43:25

43:25

Join Dina Zuckerberg, myFace's Director of Family Programs, for a thought-provoking discussion with members of the myFace community, including Nicholas Buoscio, Emily Krebs, Margaret Shair, and Patricia Simon, as we address the masks we wear, both physically and figuratively, and what’s behind those masks.…

1
This is myFace, myStory! 2:47

3+ y ago2:47

2:47

Welcome to our first episode with an introduction to myFace, myStory, a new monthly series featuring conversations with the craniofacial community. Meet Dina Zuckerberg, Director of Family Programs at myFace, an amazing organization dedicated to changing the faces – and transforming the lives – of children and adults with facial differences by prov…

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