Ep 19. INNOVATORS - Driving collaborative care for patients with HLH

Talking Rheumatology

What is the HLH Network and how is it improving patient care?

In this inaugural episode of our Innovators mini-series, Dr Alexis Jones, Dr Matt Szeto and Dr Denise De Lord join Dr Lizzy MacPhie to talk about the Haemophagocytic Lymphohistiocytosis (HLH) Network, which won a 2024 BSR Best Practice Award. The network brings together specialists from rheumatology, haematology, infectious diseases and more to provide rapid collaborative care for patients with this challenging diagnosis.

Our guests discuss the challenges of diagnosing and caring for patients with HLH, how they set up their own MDT networks to address these challenges locally, their Trusts’ improving survival rates, and the new GIRFT HLH pathway.

Want to find out more? There are lots of HLH resources to explore:

• Find out more about the team’s award-winning project
• Listen to our HLH spotlight podcast for essential practical tips from Dr Jessica Manson
• Download a copy of the new GIRFT pathway and guidance document
• Visit the HiHASC website for more resources

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BSR is the UK's leading specialist medical society for rheumatology and MSK health professionals. To discover how we can support you in delivering the best care for your patients, visit our website.